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Reasons to Participate in Healing ALS Registry Observational Study (HAROS)

Join the Registry

Join the HAROS 1000-person ALS study to find answers! Help yourself, other PALS and ALS researchers.

  • Learn approaches that have helped others slow, stabilize, or improve ALS symptoms, longevity and quality for life
  • Discover lifestyle variables that influence ALS progression
  • Feel more empowered, informed and less alone in the Healing ALS community
  • Gain insight into what may be supporting your own healing
  • Contribute to research which will expand options in ALS treatments
  • Your data helps ALS research, and allows you to track your own progress over time
  • 85% of ALS participants did better than expected in the 2024 ALS Pilot Study
  • 40% of ALS participants stabilized or gained in functionality in the 2024 ALS Pilot Study
Study Results

45-person 2024 ALS Study Results

ALS Patients who participated in Healing ALS programs, over 12 months:
  • 19% reversed ALS symptoms
  • 19% stabilized ALS symptoms
  • 22% lost only 1-4 points on the ALSFRS-R
  • 85% did better than the average expected loss of 1 point per month on the ALSFRS-R
The 1000-person HAROS study will bring clarity to what protocols are slowing, stopping and reversing ALS.
ALSFRS-R-FUNCTIONALITY
12 Month Period
Less than 3 Years Since Diagnosis N=32/45

This is an observational study.

You may continue to participate in other studies and clinical trials.

Be part of this ground-breaking ALS Study!

For more information and to sign up: Healingals.org

Questions? Email: study@HealingALS.org Text: 973-714-4621

To sign up for the Study: healingals.org/haros/

Clinical Trials Study link: https://clinicaltrials.gov/study/NCT07233148

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