Healing ALS Registry Observational Study Steps (HAROS)

Join HAROS study: Join our observational study and help find solutions for ALS now! Contribute by sharing your data only one hour each month.

Bonus: Those diagnosed with ALS who enroll in the study get the 47 Steps for free! Help yourself and help others with ALS. It is a win-win!

Once we enroll 300 participants, our researchers can generate and share meaningful findings that can improve ALS outcomes for you and the entire ALS community worldwide.

Step 1:

Benefits of participating in the HAROS Study (2 minutes). Click here

Step 2:

Read the Study Informational Document (10 minutes). Click here

Step 3:

Preview the HAROS Sample Application (2 minutes). You will complete the application in Step 6. Click here

Step 4:

Complete the 7-Day Quick Start (1-2 hrs/day x 7 days). Click here

Step 5:

Sign up for the ALS Registry. We suggest a friend or family member assist in this, if needed. Click here

  • Fill out Profile Tabs 1, 2 & 3 (1 hour)
  • Fill out Monthly Check-in (1-1.5 hours)
  • Upload your ALS/PLS/MND diagnosis in Profile Tab 1 (5 min)
.

Step 6:

Complete the Application and Informed Consent (1 hour).

Step 7:

(Optional) Sign up for email newsletter Click here. Participate in Core Weekly Programs. Click here

You will receive email confirmation.

Questions?  Email: study@healingals.org  Text: 973-714-4621

Previous 2024 Study Details: Click here

Clinical Trials link: Click here

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