Betsy Thomason, Respiratory Therapist, BODS Breathing method

Respiratory Therapist/Breathing Trainer Betsy Thomason is
documenting how PALS benefit from learning the
BreatheOutDynamic system (BODs).
Betsy continues to offer pro bono BODs telephone coaching
to folks with ALS and their caregivers. If you are interested,
please listen to the March 14, 2021 recording of Betsy’s
Healing ALS talk at healingals.org and/or peruse the website
www.outbreathinstitute.com . Then call / email Betsy at 551-
265-7561 / bzthomason@gmail.com to learn more.

The BreatheOutDynamic system basics are explained in
Chapter 3 of Just Breathe Out, as well as in a 10-minute You
Tube video located at www.outbreathinstitute.com.
Practice is required and this is where Betsy’s coaching is
helpful.

Contact Betsy for a free e-book. Just Breathe Out is also available in paper and
iTunes/Audible formats, as well as in braille and audio at the National Library Service at
the Library of Congress—for US citizens who cannot utilize a regular book. Ask you
local librarian for help with initial NLS access.

Healing ALS Groups

If you have not already, please click the green Start Here Button and read the “Where Do I Start” document above before joining these groups.

 

Scroll down for information about how to join the Healing ALS WhatsApp Group.

 

To join HealingALS on Facebook – please see Healing ALS WhatsApp rules below. Rules are the same except Boot Camp is not required to join the Healing ALS Facebook group.
https://www.facebook.com/groups/1588295991405521/

 

 

Subscribe our YouTube channel :
https://youtu.be/69XBOw5iPJI

 

To join HealingALS WhatsApp group:

This is a great group to join to share ALS healing ideas and experiences for those who have already done the basics.

 

To keep conversations at a higher level, we ask that each person applying to join the Healing ALS WhatsApp group watch all four boot camps – See Sunday Recordings.

Once you have watched all four boot camp Recordings, here is how to join:

  1. Download WhatsApp on to your phone.
  2. Agree to the following rules.
    1. The posts are not medical advice, and I will see a licensed medical professional for medical advice.
    2. We are all there to support each other, stay positive and share. Avoid criticism.
    3. This group is to share protocols you or others have found that help ALS symptoms. Please keep occasional special event posts or pics to a minimum. 
  3. Email pinakinfightsmnd@gmail.com the following information
    1. Put in the body of the email that you have watched all 4 Basic Boot Camps and that you have downloaded WhatsApp onto your phone
    2. Your Full Name
    3. Your City, State/Province and Country
    4. Your Cell phone number – Required please put in message body
    5. International: Country code 

Leap-Mission Group and Wednesday Calls

Before you join the Leap-Mission group:

  • Step 1: Do as much of the Where Do I Start? document as you can.
  • Step 2: Go to Sunday Recordings and listen to the four basic boot camps.
  • Step 3: Regularly attend Sunday Healing ALS Community Meetings and Monday Diet and Supplement Q&A’s
  • Step 4: Join the Healing ALS WhatsApp group and ask the basic questions and do sharing with this group. The Leap-Mission Telegram group is for more advanced questions.
  • Step 4: Remember that the Leap-Mission Wednesday Sergio sessions are for PALS who have already done the basics. If you have not spent a couple of months on all of the basics you will feel overwhelmed. Once you feel you have done the basics, then you are welcome to join the Leap-Mission group.

What is the Leap-Mission Group and why join?

  • Freely communicate with other PALS on gut function, protocols, antivirals, antimicrobials, what is working for other PALS.
  • Do not need to purchase Leap to join.
  • Get an Invite to regular Zoom meetings to share info.
  • Invited to join the Telegram group to share info with other PALS.
  • Sign Panda Doc for confidentiality agreement. This assures that people will not share your private info or what is discussed outside this group and you agree not to share with others.
  • Why does it cost $13/year? Because it makes the confidentiality agreement legally binding. Consider it a buyer’s club. When you join you get a discount on Leap from 15%-30% discount, which is more than the maximum 10% discount offered elsewhere.
  • Do I need to join to purchase Leap? You can purchase Leap without a membership. Use code ”markman” for 10% discount.
  • To join email: tabyta@leap-mission.com. She will send you the Panda doc.
  • For more information on Leap, visit Leapxx.com

What are the Wednesday Leap-Mission Sergio calls?

For those interested in group support in implementing part or all of Sergio’s protocol or group support of other protocols.

  • Peer support, some PALS Support.
  • This is up to YOU. This group is sharing details and answering questions about the various pieces of the protocol.
  • YOU research, YOU come and ask questions to get more info. Then research some more and YOU decide.
  • Download Telegram on your cell phone and, if you like, your computer. You need to have Telegram so you can get Zoom meeting invitations.
  • Contact Tabyta@Leap-mission.com.
  • You will be sent a confidentiality agreement and asked to pay $13 (see above).

Lazarus Ember’s ALS Reversal Protocol

We are honored to have Lazarus Ember speak at two of our Healing ALS Sunday Community Meetings: Part 1 Healing the MInd on April 25, 2021. Part 2 Healing the Body on May 2, 2021. If you missed these presentations please see Sunday Recordings button on the home page (you need to be a member, membership is free).

How did Lazarus Tony Ember go from an ALSFRS score of 27 in January 2020 to an ALSFRS score of 45 in April 2021?

Here is a link to the pdf version of Lazarus’ full protocol, mind and body, for your reference, that he graciously prepared and is sharing to assist other PALS in their healing journeys. We suggest you download it and refer to it often. There is much wisdom here.

https://drive.google.com/file/d/1HfwwXjlNpmDUK_-hsbhCQTkQZvRINqTF/view?usp=sharing

Bill Riffle Still Walking after 29 Years with ALS

Bill Riffle was diagnosed with ALS in 1992 at the age of 53 after experiencing symptoms since 1989. 

Today in 2021, Bill is 85 years old and is still walking using his walker he calls “Harley”.

Bill attributes his longevity to:

  1. Attitude. If you live long enough you will get something. Live with it, make the best of it. Stay positive and lead an active life
  2. Vitamins. Magnesium 500 mg daily Bill says is the most important, along with Vitamins B6 100 mg, B12 250 mcg, C 500 mg, E 400 IU. He has used vitamins since his first symptoms began.
  3. Exercise DVD – A DVD he has used since 1995 as well as staying as active as possible all the the time. 
  4. Faith – A strong faith in God and a community praying for him, and a sense of purpose to give hope to others diagnosed with ALS.

Bill shares his story in his book Pushing My Harley. To order the book that comes with the exercise DVD Bill uses

To contact Bill directly if you have questions about his book or DVD, his email is pushingmyharley@gmail.com.

Bill has been married to his wife Phyllis for 47 years. Phyllis says she is inspired by Bill’s positive attitude which has made her attitude positive as well. 

Bill and Phyllis are active in their church and their local community. Together they have made it through many hospital visits from injuries from falls as well as a heart attack and cancer diagnoses. 

The full interview of Bill and Phyllis Riffle will be posted below soon.

Avi Greenberg Thursday ALS Breathing Sessions

Avi Greenberg, breathing coach, is offering weekly Group Zoom sessions for ALS families every Thursday. They are free although donations are accepted. The link for the weekly Thursday meeting is below:

More information about Avi is at avigreenberg.com.

Time: Every Thursday 12PM PT, 3PM ET (US), 9PM Europe

Join Zoom Meeting:

Avi Greenburg is inviting you to a scheduled zoom meeting:

https://us02web.zoom.us/j/89349796748?pwd=QjNIdWFZa2JkNi83djNWSGlqN2RWQT09

Passcode: 082290

You may also email Avi at hi@avigreenberg.com. He will add you to his email list.

Article about Breathing:

https://www.scientificamerican.com/article/vision-and-breathing-may-be-the-secrets-to-surviving-2020/

Recommended book: The Oxygen Advantage by Patrick McKeown

Resources for Boot Camp Week 3 Mind

Resources for Meditation Recommended by Other PALS

For novice meditator, downloaded “Head Space” app

  • Start with 5 min, progressed to 30 min
  • Start with quieting the mind
  • Focus on breathing and the present moment
  • Continue my prayer routine also

Joe Dispenza’s meditations

  • Breaking the Habit of Being Yourself
  • You are the Placebo

Many Meditations on YouTube

  • Find what and who appeals to you

Other Mediations Recommended by other PALS

  • https://www.oprahmag.com/life/health/g29861798/best-meditation-apps/
  • https://chopra.com/articles/guided-meditations
  • “Practicing  Mindfullness: 75 Essential Meditations to Reduce Stress, Improve Mental Health, and Find Peace in the Everyday” by Matthew Sockolov                    $12.79 on Amazon
  • “Present, Not Perfect: A Journal For Slowing Down, Letting Go, and Loving Who You Are” by Aimee Chase  $6.79 Amazon
  • “Little Book of Mindfullness: 10 minutes a day to less stress, more peace by Patricia Collard          $5.69 Amazon
  • Find freedom  from stress and more peace in your life.
    https://www.youtube.com/watch?v=oYXZlgeU-Q8
  • https://www.goodreads.com/book/show/14096.Wherever_You_Go_There_You_Are?from_search=true&from_srp=true&qid=H5h8mDXwLc&rank=2
  • Jon Kabat-Zin is head of Mindfulness Center @ MGHEye

Dr. Ashish Patel Ayurvedic Medicine and ALS

We were very honored to have Dr. Ashish Patel, MD as our presenter at our Healing ALS Sunday Community meeting on September 20, 2020. Dr. Patel received his BAMS from Indore University and his MD degree at BHU in India in Ayurvedic Medicine with a specialty in neurological disorders and neuropsychiatry. He also has is diploma in Yogy at BHU, and has worked as an assistant professor at the Ayurvedic Medical College in Rewa. He is currently a government Ayurvedic Medical Officer. He runs an Ayurvedic clinic in Central India.

His wife, Dr. Kirti Patel was on hand for the Q&A part of the presentation. Dr. Kirti Patel has her MD in Ayurveda from Tilak Ayurvedic College with a specialty in panchkarma, Sink disorders and gynecological disorders. She worked as an assistant professor and RD Memorial Ayurvedic College in Bhopal from 2012 to 2016 and currently works as an Ayurvedic medical officer at DIstrict Ayush Hospital Sagar.

Here is a their presentation:

 

Lisa Petsu ALS Reversal-In-Progress

Lisa Petsu was told in mid-2018 it looked like it might be ALS. She was devastated. She was only 46 years old, the mother of four girls, ranging from elementary school to high school. She worked full time as a teacher. Her family depended on her for income and, through her job, the family’s health insurance. Her daughters needed her, she couldn’t die, there had to be something she could do.

Lisa went online and found people who had reversed ALS and decided to do what they did. She ate organic, stopped eating processed food, and stopped eating sugar, gluten and dairy. she started daily prayer (she had never consistently prayed before) and added meditation. She watched videos about ALS reversals. Lisa had learned discipline as a classical ballerina. She had worked hard her whole life. She was going to work hard to beat this disease.

Despite all of this, Lisa’s ALS symptoms continued to worsen. Her lower leg was useless, she needed an AFO leg brace every day. Her foot just flopped without it. Her fasciculations worsened, her muscle cramps worsened, her hands got weaker and weaker and her grip strength continued to decline. In September 2018  two different neurologists said it looked like probable ALS.

Lisa became more determined than ever to heal. She added visualization to her meditation routine. She spent 1.5 hours each morning in her car between the time she dropped off her oldest daughter at high school at 6:30AM and 8AM when she could get into the elementary school. The time in her car she spent journaling, reading, praying and meditating. She also added prayer and meditation at lunch and before bed.

Despite this Lisa’s voice got weaker and weaker and she needed a voice amplifier in front of her class in order for her students to hear her. Her grip strength worsened, she could no longer use a staple gun and do the basic things she needed to do as an art teacher. The school principal approved a her a full-time aide in her classroom. In January she asked her local neurologist how sure he was that she had ALS because if she had ALS she was going to cash out her retirement account and take the family to Paris. He said he would cash out the retirement account and she did.

On February 12, 2019 the head neurologist at Johns Hopkins said she had definite ALS in her leg and a definitive ALS diagnosis was “inescapable”. Two other neurologists confirmed his opinion. Lisa was devastated. She had been working so hard at healing. Yet at the same time something “shifted” in her. She was more determined than ever that she would heal.

Out of desperation, Lisa prayed harder than she ever had. She also surrendered. She said, “God, I know that you can heal me. Please, help me heal. I will do everything in my power to do my part”. She also said, “God if it is your will that I don’t heal that is okay but if at all possible, please, I would like to help my daughters grow up and be there for them.”

That week Lisa would try to move her foot for hours each day. By Friday she started feeling pain in her foot. She felt like it was “waking up”. Over the weekend when she was in Manhatten for her eldest daughter’s 16th birthday, she kept trying to move her foot. She heard a voice that said, “Keep trying to move your foot. It will get unstuck.” She kept trying with no result, for hours again on Saturday, and Saturday late evening at the hotel. Finally at 2AM she needed to go to bed. She lay in bed and the voice said, “Try one more time.” Her foot moved 1 millimeter, and Lisa was ecstatic. She stayed up the rest of the night trying to move her foot more and more and cat-napping in between. By morning she had almost full movement in her foot that had not moved for over six months.

This was the beginning of Lisa’s healing. She saw two neurologists after she recovered her movement and neither could believe that she had recovered her foot so quickly. Both called it “miraculous”.

In April 2019 Lisa took her family to Paris. She started on the Medical Medium diet. In June 2019 Lisa recovered most of the strength in her hands after more prayer, daily soakings in epsom salts or Himalayan sea salts and other modalities.

Today, Lisa is not fully healed from her ALS symptoms. Yet she is determined to heal the rest of the way and we believe she will be successful.

Lisa continues to make sure that, along with all the seriousness she has in her healing protocol that she has fun. She enjoys thoroughly her time with her four children. She also goes out with friends.

We met Lisa through our volunteer coordinator, Gabi-Faye. Gabi-Faye’s mother Anita has ALS and when they met at a meditation workshop, they quickly bonded.

This is Lisa and Gabi-Faye.

Below is the video of Lisa’s presentation this past Sunday, and below is Lisa’s entire protocol and all the things she has done to heal so far. Stay tuned for the rest of Lisa’s story as she continues her healing journey.

 

Lisa Petsu –Lagunes’              Meditation Evolution

#1  I started praying, really praying for the first time in my life.

#2  I started praying to Saint Anthony (the restorer of lifeless limbs and lost things) at my mother’s suggestion.  She still prays this Rosary weekly as do I.

#3  A teacher colleague suggested I watch the documentary HEAL showing on Netflix.  This is the first time I see Dr. Joe Dispenza and his story gave me hope.  I watched it every night after work on a loop with my flail foot propped on the couch formulating a plan to heal myself. I also came across Stephen Sherry’s video on HealingALS.org and that gave me some measure of hope.  I didn’t get past his video.  I thought he was probably the only one in the world that had somewhat healed.  I ADDED MEDITATION TO MY PRAYER ROUTINE. 

*Prayer, meditation and mantra are all related and have been my main protocol from very early on.

* After my LLE paralysis reversal I began to add yoga, specifically Kundalini yoga, because it works on balancing your nervous system very actively and quickly.  It also incorporates mantra, and meditation simultaneously with asana or physical practice.  I would have started it sooner if I had known about it.

#4  How do I meditate? I am a novice. I downloaded THE HEADSPACE APP suggested to me by a colleague.  Teachers are the best advice givers!  The narrator’s voice is soothing and I have a thing for British accents. It is Buddhist based, mindful, and focused on breathing and becoming centered in the present moment.  I start out with 5 min. and progress to 30 min.++   I added this to my prayer routine.  At this time, I was also devouring books about ALS, meditation, spirituality and existentialism. This routine took about an hour and a half every morning.  After I dropped off my daughter off at her H.S. bus stop I waited in my car in the school parking lot for the building to open and meditated, prayed, read and journaled.  This was fall/winter and my car was my warm cocoon.  *This is still my main protocol and the only way I make it through each day. 

#5  Many people began to pray for me at church and at school. My colleagues held daily prayer circles for me multiple times each day using different faith traditions. They laid hands on me.  I found this new experience very powerful.   I could feel myself opening up spiritually in a totally new way.  I knew that my will power was relentless even on my darkest days.  I also knew that what I was facing was bigger than my personal will to live so I had to connect and surrender to a higher power.   

#5   Now I become interested in a more focused type of meditation called visualization.  This was the strategy Dr. Joe Dispenza used to heal his spinal injury.  I felt this would be even more powerful for my healing.  I listened to Shakti Gawain’s Creative Visualization on Audible and started to direct golden white healing light, ranging from liquid gold to more diffuse radiant golden sunlight throughout my body every morning and evening for as long as I could.  I was having many MRI’s at this time to try and rule out many diseases.  I have had every part of my body imaged multiple times.  I put my imaging CD’s into my computer and become an amateur radiologist.  This helped me tremendously when doing my visualization meditation.  I would spend hours looking at my imaging studies.  I learned to question everything. Today, I 100% trust my intuition.  Meditation fine tunes my intuition.

 

#6   I purchased Joe Dispenza’s meditations on Audible.  I started doing the 45 min. You Are the Placebo meditation.  I started exploring Eastern Religion and Yogic Philosophy more and more.  I added mantra chanting into my routine which is now a solid hour and a half every morning in my car, in the closet during lunch at work, and before bed. I believe the sound vibration created by mantra chanting activates healing on a cellular level in my body.  If you don’t know what all the words mean at first that’s ok.  It is more about your pure intention and the healing vibrations you are generating throughout your body and mind.  Tibetan Crystal Bowls and Gong Baths can also create these healing vibrations.  My yoga teacher does Sound Healing at the end of class.  It was the only thing that was keeping me going at this point. My left lower leg and foot were completely paralyzed, my hands were barely functioning, and my voice was shaky.  I had to teach art to 700 children each week.  How am I going to make it through the day?  That was my daily question.  In hindsight, working, meditating and moving my body as much as possible was key.  I was squeezing a stress ball and therapy putty all day at work at my neurologist’s suggestion, and doing PT 3X a week. My principal gave me an assistant for the first time in 23 years.

#7   I needed my visualization meditations to be more visual.  More targeted and specific.  The way Dr. Dispenza could visualize all the parts of his spine, I needed that advantage too.  I buy anatomy study cards and start reviewing them on my lunch break at work so I can apply the golden light specifically as well as cellularly throughout my body. I bought this amazing book called The Beautiful Brain/ The Drawings of Santiago Ramon y Cajal, the first neuro scientist.  Elegant drawings of motor neurons and all parts of the brain.  As an artist I was able to relate to the beauty of his drawings and it made my meditations so much more positive and rich.  I started to be able to meditate on my own without guidance.  I was able to personalize my practice and go deeper that way, although I still did the guided meditations too. Imagination is key for good visualizations.  I used to imagine myself walking in high heels to the opera and running on the beach instead of wearing my AFO.  

*A year after the reversal I took myself to the opera at Lincoln Center and wore heels for my 47th birthday! The running on the beach was going to take place in Italy this summer in St. Anthony’s town on the Amalfi coast, but because of COVD-19 it will most likely be at the good ol’ Jersey shore instead.

#8  I am told I have a suspicious mass in my bladder after my reversals and during a subsequent workup at Mayo Clinic to investigate my unexplained situation.  I decided I needed to level up my meditation.  I called a hypnotherapist 3 days before flying back out to Mayo for surgery to remove the mass.  I had recently met her at a local street fair.  I had no idea what to expect but I followed my intuition.  Hypnotherapy is a lot like tailor made guided meditation.  I had seen the mass on video, had a good visual, and the therapist and I recorded a specific audio meditation that I listened to continuously for 3 days prior to surgery.  I listened on the airplane, during pre op, while sleeping and awake.  Mayo wouldn’t let me bring headphones into the OR.  I woke up from surgery and was informed that the mass had disappeared!  Miracle # 4.  The lead doctor was interested in hypnotherapy at that point and did take notes. * A great online hypnotherapy course is Marisa Peer’s Uncompromised Life on Mindvalley.com.  She also has her own website.  She is no nonsense and has a British accent!  You just want to obey her.  If you don’t have access or mobility to see a personal hypnotherapist this is a great resource.  I still listen to the audios every morning and evening after the course completion.  She has a Healing Vortex and Cell Command Therapy script Week 5/6 of this program that are amazing!  She also gives great practical advice about how to manage your mind during her lectures and Q&A sessions. 

 

 

 

#9  Cell Command Therapy- You are directing you’re CONFUSED CELLS AND NEURONS.  You are the commanding teacher and you are guiding them to wellness.  Remember, be conscious of your language.  They are not weak, dying, or turning against you.  They are just confused and your mind is going to set them straight. This is the main idea with cell command hypnotherapy. My therapist helped me realize how negatively we talk to and about our brains and bodies without knowing it. Even though you may feel so downtrodden at times you can catch yourself using negative language and choose to make a mental shift toward more affirming language.  This is a daily focus for me.  It seemed superficial at first but it works.

#10  Today I do a combination of meditation, mantra, prayer, and have become deeply involved in various forms of yoga and spiritual practice. Since meditation continues to play such a huge role in my healing I am planning a pilgrimage to India as soon as travel is safe.  Remember, I started out doing 5 min. meditations on the Headspace App!

 

Other ideas:

I suggest you have a soundtrackMusic is a form of hypnotherapy.  Athletes run on to the field to loud, pumping music.  You are a mental athlete!  Marisa Peer promotes this idea.   I personally don’t believe it is 50/50- mental/nutrition regarding healing.  In my opinion, from my research and experience, it is more like 100% the mind.  If you get control of your mind the body will naturally crave, and instinctually guide you to all the right treatments, foods, diet, and supplements needed for your particular healing. No magic pill.

So, you need a sound track to pump you up more than anybody!  I can provide some examples from my personal soundtrack.  Listen to it as much as you can.  Get your books on Audible.  Listen to them over and over.  Repetition is KEY when training the mind.  Fall asleep listening to your recorded affirmations, soundtrack, or spiritual books. It filters into the subconscious more easily in twilight before sleep. If you can still write, fill up journals with positive affirmations. If not, listen to recorded ones. I still do this. Repetition is key.

Soak in baths with Himalayan salt as much as possible. I did this every day for a month or two when I was trying to get my hands back. I used an entire giant bottle of salt for each bath.  It wasn’t cheap!  I use Epsom salts with Eucalyptus when I can’t afford Himalayan salt.  At times I thought I would pass out in the tub but I was trying to detox my hands back to life.  Sometimes you have to go hard!  I would talk to my hands under the bath water while trying to coax them to come back and do their job.  Sounds crazy right? Try it. What have you got to lose?  Remember, I did this stuff for months with absolutely no improvement and continued decline.  Until one day…. My hands started to function again!   They are still weak, but they are so much better!  My reversals may seem to happen overnight but I grind it out every day and I do the work.  Yoga and meditation work best if you do them consistently.  Spiritually, I believe it is not entirely up to you.  I do what I can do then I surrender to God.  I just wanted a better outcome.  I wasn’t thinking about miracles.  I think that is what keeps me striving, a hope for a better outcome in each present moment.

Talk to your body and yourself so lovingly but also be stern.  Rub your body with sesame oil or grape seed oil and bergamot essential oil.  Another lively one is Eucalyptus.  Lively is key.  I also experiment with Ayurvedic Oils from India. 

Order The Miracle Ball Method from Amazon by Elaine Petrone and do it daily or get someone to help you. Similar to Melt Method.  Great if you can’t afford massages. Uses your own body weight to relieve muscle tension from immobility.  I wish I had known about it sooner. I had multiple blood clots in my left leg so massages couldn’t happen for me until after my reversal.  No one would touch me.

I do acupuncture, Reiki, Qi Gong, Sound Healing, Kundalini, Hatha, Yin yoga, and massage to manage my ongoing symptoms.

I do warm water with lemon and ginger, celery juice, blueberry detox smoothie, (Anthony William) every morning on an empty stomach with 15 minutes in between each drink.  I trust Anthony William.  I pick the parts of his protocols that work best for me.  I follow his recipes as faithfully as possible.   I am a vegan now.  Usually Raw Until 4pm, then cooked.  This was a gradual process. My gut is great now.  Not the case prior.  This diet works for me but I always remain flexible.  I don’t think nutrition should be the same for everyone.  I just feel better eating this way.  It also aligns with my spiritual beliefs.

Minimal supplements – B12, sublingual, D3-K2, Esther C W/Rosehips, refrigerated probiotic, Zinc as needed.  Adjust as needed.

Quick sample soundtrack:

Anything by JayZ when I need confidence and swagger. (Don’t listen if you are sensitive to profanity)

In My Blood- Shawn Mendes

There’s Nothing Holding Me Back- Shawn Mendes

Let’s Get It Started- Black Eyed Peas

Miss Independent- Neo

Shackles (Praise) – Mary Mary

All The Way Up- Fat Joe

Sexy And I Know It- LMFAO

Can’t Hold Us- Macklemore & Ryan Lewis

I Gotta Feeling- Black Eyed Peas

Vivir Mi Vida- Marc Anthony

Rebel Girl- Bikini Kill – punk rock

Days Like This- Van Morrison

Brave- Sara Bareilles

Make It Happen- Mariah Carey

Hindu mantra chanting by Deva Premal, Kundalini mantras by Jai Jagdeesh

Favorite Podcast: 

Ram Dass Here and Now/ Love Serve Remember

The Mind Valley Podcast

Apps:

The Breathing App – Resonance Breathing/ Simple Yogic Breathing (I do 30 minutes of the 6:6 breathing) this can help calm your fears and lead you into a peaceful meditative state)

Sadhguru App – Popular Indian Guru- guided meditations, chanting, darshan, and online course called Inner Enginering

Pranayama (Yogic Breathing)

You Tube- Baba Ramdev (extremely popular Indian Swami) Complete Package of Pranayama for Beginners

Robert Moses – www.namarupa.org- online Pranayama courses- all levels.

(The best way to learn Pranayama is from an experienced yoga teacher in person).

Meditations (Kundalini mantras/guided meditations) by Dr. Ramdesh- I get mine on Spotify

Hypnotherapy online:  Marisa Peer on MindValley.com (Uncompromised Life Course) or Marisa Peer.com

My local hypnotherapist is Lopa Visaveliya at Purandhri Hypnotherapy Montclair, NJ

Phone: 201-254-7562 She does Zoom Sessions now.

Spiritual Nutrition: Anthony William /Medicalmedium.com

Pelvic Floor Therapy-

Pelvic Floor Yoga by Leslie Howard/ YogaUonline

Practicing Muladhara Banda (root lock) in yoga

Pelvic floor neuro stim device Mayo Clinic prescribed for me 2x a week (really helps)

BTL Emsella chair 6 treatments/ MRI technology to stimulate motor neurons in pelvic floor ( after the first session I feel so much stronger

 

A few books:

Living from a place of Surrender- Michael A. Singer (the course)

The Four Agreements- don Miguel Ruiz

The Untethered Soul and the Surrender Experiment- Michael A. Singer

Creative Visualization and Living in the Light- Shakti Gawain (better on Audible because they are mostly meditations)

Breaking the Habit of Being Yourself- Joe Dispenza (+meditations on Audible by Dr. Joe)

The Biology of Belief- Bruce Lipton

Stop Doing That Shit- Gary John Bishop (on Audible, hilarious, Scottish accent)

Autobiography of A Yogi-  Paramahansa Yogananda

The Beautiful Brain, The Drawings of Santiago Ramon y Cajal- abramsbooks.com (art book, gorgeous drawings, inspiring for meditation)

Be Here Now- Baba Ram Dass- (far out, groovy, great reading list at the end of book for continued research)

The Complete Illustrated Book of Yoga by Swami Vishnu-devananda -Chapter 8- Pranayama

The Science of Pranayama- Swami Sivananda

The Journey Within and The Journey Home by Radhanath Swami (An American Swami, both NYTimes Best Sellers)

Kundalini, The Arousal of the Inner Energy- Ajit Mookerjee

When Breathe Becomes Air- Paul Kalanithi (mortality, profound)

The Book of Secrets- Deepak Chopra (classic, can’t go wrong with Deepak)

ALS Saved My Life, until it didn’t- Dr. Jenni Kleinman Berebitsky (practical ALS hacks from a holistic doctor with ALS, inspiring and heartbreaking)

Any book by Anthony William- I like his first book Medical Medium as a general introduction and his Life Changing Foods book for recipes.

Until I Say Goodbye- Susan Spencer Wendel (an approach to mortality/ALS)

The Glass Castle- Jeanette Walls (best overcoming adversity story)

The Power of Now- Eckhardt Tolle- (classic, saved the best for last)  

 

 

Alejandro’s ALS Reversal

Alejandro Bianchetti, from Argentina, was diagnosed with ALS in January of 2016 at age 54.  He did a lot of research on how he could possibly reverse it. He experimented with different supplements. He found he felt better after running and ran two half-marathons. He studied the Krebs cycle and felt that glucose would be key in the process of reversing ALS. Those with ALS appeared to be wasting away and he tried to figure out why. 

Alejandro also read a lot about the power of the mind. Hie could see the results of his thinking on his physical condition.

Despite off of this he continued to get worse.

By February 2018 Alejandro could not swallow, had difficulty breathing and could barely move. He needed assistance with all the basics of daily living.

He entered the hospital on February 23, 2018 and on March 3 the doctors told him that if he was going to survive he would need a tracheostomy and a feeding tube.

He made up his mind at that moment that he would heal from ALS. He had been meditating and training his mind since he was diagnosed but he did much more of it while in the hospital.

Here is is the book that Alejandro used to help him get his breathing back while in the hospital:

 

 

 

 

He arranged to get IV fluids at home and added supplements, like Co10. He arranged for injections of glutathione and thiamine pyrophosphate. 

Today Alejandro has completed five marathons, many half-marathons and countless other 5K and 10K races.

How did Alejandro go from needing a tracheostomy and feeding tube and barely moving to being able to run marathons today?

Below is the video recording of the details of what Alejandro did to heal followed by a Q&A. After the video are links to Alejandro’s full protocol.

 

Here is the link to Alejandro’s protocol in English: https://docs.google.com/document/d/1u_AdDEznRtwGFQsCnytLlJdiNaC3OqMYL32m51MQHvo/edit?usp=sharing

Here is the link to Alejandro’s protocol in Spanish: https://docs.google.com/document/d/1n70X2AXcuihgD1kfJmuqAQcT_-9xKGWX11c6YwGVgLo/edit?usp=sharing

Above is Alejandro’s physical protocol yet he says his mental protocol is just as important if not more important. If he is under stress he loses functionality immediately, reversing hard-won gains. He is careful to think of everything even negative things in a positive light because he has learned that it is a combination of his thinking and his physical protocol that is helping him heal.

Today Alejandro is dedicated to sharing his story and helping others find solutions to ALS. Others have used his protocol and it is helping them. ALS researchers are studying what he has done to heal.