Dr. Ashish Patel Ayurvedic Medicine and ALS

We were very honored to have Dr. Ashish Patel, MD as our presenter at our Healing ALS Sunday Community meeting on September 20, 2020. Dr. Patel received his BAMS from Indore University and his MD degree at BHU in India in Ayurvedic Medicine with a specialty in neurological disorders and neuropsychiatry. He also has is diploma in Yogy at BHU, and has worked as an assistant professor at the Ayurvedic Medical College in Rewa. He is currently a government Ayurvedic Medical Officer. He runs an Ayurvedic clinic in Central India.

His wife, Dr. Kirti Patel was on hand for the Q&A part of the presentation. Dr. Kirti Patel has her MD in Ayurveda from Tilak Ayurvedic College with a specialty in panchkarma, Sink disorders and gynecological disorders. She worked as an assistant professor and RD Memorial Ayurvedic College in Bhopal from 2012 to 2016 and currently works as an Ayurvedic medical officer at DIstrict Ayush Hospital Sagar.

Here is a their presentation:

 

Lisa Petsu ALS Reversal-In-Progress

Lisa Petsu was told in mid-2018 it looked like it might be ALS. She was devastated. She was only 46 years old, the mother of four girls, ranging from elementary school to high school. She worked full time as a teacher. Her family depended on her for income and, through her job, the family’s health insurance. Her daughters needed her, she couldn’t die, there had to be something she could do.

Lisa went online and found people who had reversed ALS and decided to do what they did. She ate organic, stopped eating processed food, and stopped eating sugar, gluten and dairy. she started daily prayer (she had never consistently prayed before) and added meditation. She watched videos about ALS reversals. Lisa had learned discipline as a classical ballerina. She had worked hard her whole life. She was going to work hard to beat this disease.

Despite all of this, Lisa’s ALS symptoms continued to worsen. Her lower leg was useless, she needed an AFO leg brace every day. Her foot just flopped without it. Her fasciculations worsened, her muscle cramps worsened, her hands got weaker and weaker and her grip strength continued to decline. In September 2018  two different neurologists said it looked like probable ALS.

Lisa became more determined than ever to heal. She added visualization to her meditation routine. She spent 1.5 hours each morning in her car between the time she dropped off her oldest daughter at high school at 6:30AM and 8AM when she could get into the elementary school. The time in her car she spent journaling, reading, praying and meditating. She also added prayer and meditation at lunch and before bed.

Despite this Lisa’s voice got weaker and weaker and she needed a voice amplifier in front of her class in order for her students to hear her. Her grip strength worsened, she could no longer use a staple gun and do the basic things she needed to do as an art teacher. The school principal approved a her a full-time aide in her classroom. In January she asked her local neurologist how sure he was that she had ALS because if she had ALS she was going to cash out her retirement account and take the family to Paris. He said he would cash out the retirement account and she did.

On February 12, 2019 the head neurologist at Johns Hopkins said she had definite ALS in her leg and a definitive ALS diagnosis was “inescapable”. Two other neurologists confirmed his opinion. Lisa was devastated. She had been working so hard at healing. Yet at the same time something “shifted” in her. She was more determined than ever that she would heal.

Out of desperation, Lisa prayed harder than she ever had. She also surrendered. She said, “God, I know that you can heal me. Please, help me heal. I will do everything in my power to do my part”. She also said, “God if it is your will that I don’t heal that is okay but if at all possible, please, I would like to help my daughters grow up and be there for them.”

That week Lisa would try to move her foot for hours each day. By Friday she started feeling pain in her foot. She felt like it was “waking up”. Over the weekend when she was in Manhatten for her eldest daughter’s 16th birthday, she kept trying to move her foot. She heard a voice that said, “Keep trying to move your foot. It will get unstuck.” She kept trying with no result, for hours again on Saturday, and Saturday late evening at the hotel. Finally at 2AM she needed to go to bed. She lay in bed and the voice said, “Try one more time.” Her foot moved 1 millimeter, and Lisa was ecstatic. She stayed up the rest of the night trying to move her foot more and more and cat-napping in between. By morning she had almost full movement in her foot that had not moved for over six months.

This was the beginning of Lisa’s healing. She saw two neurologists after she recovered her movement and neither could believe that she had recovered her foot so quickly. Both called it “miraculous”.

In April 2019 Lisa took her family to Paris. She started on the Medical Medium diet. In June 2019 Lisa recovered most of the strength in her hands after more prayer, daily soakings in epsom salts or Himalayan sea salts and other modalities.

Today, Lisa is not fully healed from her ALS symptoms. Yet she is determined to heal the rest of the way and we believe she will be successful.

Lisa continues to make sure that, along with all the seriousness she has in her healing protocol that she has fun. She enjoys thoroughly her time with her four children. She also goes out with friends.

We met Lisa through our volunteer coordinator, Gabi-Faye. Gabi-Faye’s mother Anita has ALS and when they met at a meditation workshop, they quickly bonded.

This is Lisa and Gabi-Faye.

Below is the video of Lisa’s presentation this past Sunday, and below is Lisa’s entire protocol and all the things she has done to heal so far. Stay tuned for the rest of Lisa’s story as she continues her healing journey.

 

Lisa Petsu –Lagunes’              Meditation Evolution

#1  I started praying, really praying for the first time in my life.

#2  I started praying to Saint Anthony (the restorer of lifeless limbs and lost things) at my mother’s suggestion.  She still prays this Rosary weekly as do I.

#3  A teacher colleague suggested I watch the documentary HEAL showing on Netflix.  This is the first time I see Dr. Joe Dispenza and his story gave me hope.  I watched it every night after work on a loop with my flail foot propped on the couch formulating a plan to heal myself. I also came across Stephen Sherry’s video on HealingALS.org and that gave me some measure of hope.  I didn’t get past his video.  I thought he was probably the only one in the world that had somewhat healed.  I ADDED MEDITATION TO MY PRAYER ROUTINE. 

*Prayer, meditation and mantra are all related and have been my main protocol from very early on.

* After my LLE paralysis reversal I began to add yoga, specifically Kundalini yoga, because it works on balancing your nervous system very actively and quickly.  It also incorporates mantra, and meditation simultaneously with asana or physical practice.  I would have started it sooner if I had known about it.

#4  How do I meditate? I am a novice. I downloaded THE HEADSPACE APP suggested to me by a colleague.  Teachers are the best advice givers!  The narrator’s voice is soothing and I have a thing for British accents. It is Buddhist based, mindful, and focused on breathing and becoming centered in the present moment.  I start out with 5 min. and progress to 30 min.++   I added this to my prayer routine.  At this time, I was also devouring books about ALS, meditation, spirituality and existentialism. This routine took about an hour and a half every morning.  After I dropped off my daughter off at her H.S. bus stop I waited in my car in the school parking lot for the building to open and meditated, prayed, read and journaled.  This was fall/winter and my car was my warm cocoon.  *This is still my main protocol and the only way I make it through each day. 

#5  Many people began to pray for me at church and at school. My colleagues held daily prayer circles for me multiple times each day using different faith traditions. They laid hands on me.  I found this new experience very powerful.   I could feel myself opening up spiritually in a totally new way.  I knew that my will power was relentless even on my darkest days.  I also knew that what I was facing was bigger than my personal will to live so I had to connect and surrender to a higher power.   

#5   Now I become interested in a more focused type of meditation called visualization.  This was the strategy Dr. Joe Dispenza used to heal his spinal injury.  I felt this would be even more powerful for my healing.  I listened to Shakti Gawain’s Creative Visualization on Audible and started to direct golden white healing light, ranging from liquid gold to more diffuse radiant golden sunlight throughout my body every morning and evening for as long as I could.  I was having many MRI’s at this time to try and rule out many diseases.  I have had every part of my body imaged multiple times.  I put my imaging CD’s into my computer and become an amateur radiologist.  This helped me tremendously when doing my visualization meditation.  I would spend hours looking at my imaging studies.  I learned to question everything. Today, I 100% trust my intuition.  Meditation fine tunes my intuition.

 

#6   I purchased Joe Dispenza’s meditations on Audible.  I started doing the 45 min. You Are the Placebo meditation.  I started exploring Eastern Religion and Yogic Philosophy more and more.  I added mantra chanting into my routine which is now a solid hour and a half every morning in my car, in the closet during lunch at work, and before bed. I believe the sound vibration created by mantra chanting activates healing on a cellular level in my body.  If you don’t know what all the words mean at first that’s ok.  It is more about your pure intention and the healing vibrations you are generating throughout your body and mind.  Tibetan Crystal Bowls and Gong Baths can also create these healing vibrations.  My yoga teacher does Sound Healing at the end of class.  It was the only thing that was keeping me going at this point. My left lower leg and foot were completely paralyzed, my hands were barely functioning, and my voice was shaky.  I had to teach art to 700 children each week.  How am I going to make it through the day?  That was my daily question.  In hindsight, working, meditating and moving my body as much as possible was key.  I was squeezing a stress ball and therapy putty all day at work at my neurologist’s suggestion, and doing PT 3X a week. My principal gave me an assistant for the first time in 23 years.

#7   I needed my visualization meditations to be more visual.  More targeted and specific.  The way Dr. Dispenza could visualize all the parts of his spine, I needed that advantage too.  I buy anatomy study cards and start reviewing them on my lunch break at work so I can apply the golden light specifically as well as cellularly throughout my body. I bought this amazing book called The Beautiful Brain/ The Drawings of Santiago Ramon y Cajal, the first neuro scientist.  Elegant drawings of motor neurons and all parts of the brain.  As an artist I was able to relate to the beauty of his drawings and it made my meditations so much more positive and rich.  I started to be able to meditate on my own without guidance.  I was able to personalize my practice and go deeper that way, although I still did the guided meditations too. Imagination is key for good visualizations.  I used to imagine myself walking in high heels to the opera and running on the beach instead of wearing my AFO.  

*A year after the reversal I took myself to the opera at Lincoln Center and wore heels for my 47th birthday! The running on the beach was going to take place in Italy this summer in St. Anthony’s town on the Amalfi coast, but because of COVD-19 it will most likely be at the good ol’ Jersey shore instead.

#8  I am told I have a suspicious mass in my bladder after my reversals and during a subsequent workup at Mayo Clinic to investigate my unexplained situation.  I decided I needed to level up my meditation.  I called a hypnotherapist 3 days before flying back out to Mayo for surgery to remove the mass.  I had recently met her at a local street fair.  I had no idea what to expect but I followed my intuition.  Hypnotherapy is a lot like tailor made guided meditation.  I had seen the mass on video, had a good visual, and the therapist and I recorded a specific audio meditation that I listened to continuously for 3 days prior to surgery.  I listened on the airplane, during pre op, while sleeping and awake.  Mayo wouldn’t let me bring headphones into the OR.  I woke up from surgery and was informed that the mass had disappeared!  Miracle # 4.  The lead doctor was interested in hypnotherapy at that point and did take notes. * A great online hypnotherapy course is Marisa Peer’s Uncompromised Life on Mindvalley.com.  She also has her own website.  She is no nonsense and has a British accent!  You just want to obey her.  If you don’t have access or mobility to see a personal hypnotherapist this is a great resource.  I still listen to the audios every morning and evening after the course completion.  She has a Healing Vortex and Cell Command Therapy script Week 5/6 of this program that are amazing!  She also gives great practical advice about how to manage your mind during her lectures and Q&A sessions. 

 

 

 

#9  Cell Command Therapy- You are directing you’re CONFUSED CELLS AND NEURONS.  You are the commanding teacher and you are guiding them to wellness.  Remember, be conscious of your language.  They are not weak, dying, or turning against you.  They are just confused and your mind is going to set them straight. This is the main idea with cell command hypnotherapy. My therapist helped me realize how negatively we talk to and about our brains and bodies without knowing it. Even though you may feel so downtrodden at times you can catch yourself using negative language and choose to make a mental shift toward more affirming language.  This is a daily focus for me.  It seemed superficial at first but it works.

#10  Today I do a combination of meditation, mantra, prayer, and have become deeply involved in various forms of yoga and spiritual practice. Since meditation continues to play such a huge role in my healing I am planning a pilgrimage to India as soon as travel is safe.  Remember, I started out doing 5 min. meditations on the Headspace App!

 

Other ideas:

I suggest you have a soundtrackMusic is a form of hypnotherapy.  Athletes run on to the field to loud, pumping music.  You are a mental athlete!  Marisa Peer promotes this idea.   I personally don’t believe it is 50/50- mental/nutrition regarding healing.  In my opinion, from my research and experience, it is more like 100% the mind.  If you get control of your mind the body will naturally crave, and instinctually guide you to all the right treatments, foods, diet, and supplements needed for your particular healing. No magic pill.

So, you need a sound track to pump you up more than anybody!  I can provide some examples from my personal soundtrack.  Listen to it as much as you can.  Get your books on Audible.  Listen to them over and over.  Repetition is KEY when training the mind.  Fall asleep listening to your recorded affirmations, soundtrack, or spiritual books. It filters into the subconscious more easily in twilight before sleep. If you can still write, fill up journals with positive affirmations. If not, listen to recorded ones. I still do this. Repetition is key.

Soak in baths with Himalayan salt as much as possible. I did this every day for a month or two when I was trying to get my hands back. I used an entire giant bottle of salt for each bath.  It wasn’t cheap!  I use Epsom salts with Eucalyptus when I can’t afford Himalayan salt.  At times I thought I would pass out in the tub but I was trying to detox my hands back to life.  Sometimes you have to go hard!  I would talk to my hands under the bath water while trying to coax them to come back and do their job.  Sounds crazy right? Try it. What have you got to lose?  Remember, I did this stuff for months with absolutely no improvement and continued decline.  Until one day…. My hands started to function again!   They are still weak, but they are so much better!  My reversals may seem to happen overnight but I grind it out every day and I do the work.  Yoga and meditation work best if you do them consistently.  Spiritually, I believe it is not entirely up to you.  I do what I can do then I surrender to God.  I just wanted a better outcome.  I wasn’t thinking about miracles.  I think that is what keeps me striving, a hope for a better outcome in each present moment.

Talk to your body and yourself so lovingly but also be stern.  Rub your body with sesame oil or grape seed oil and bergamot essential oil.  Another lively one is Eucalyptus.  Lively is key.  I also experiment with Ayurvedic Oils from India. 

Order The Miracle Ball Method from Amazon by Elaine Petrone and do it daily or get someone to help you. Similar to Melt Method.  Great if you can’t afford massages. Uses your own body weight to relieve muscle tension from immobility.  I wish I had known about it sooner. I had multiple blood clots in my left leg so massages couldn’t happen for me until after my reversal.  No one would touch me.

I do acupuncture, Reiki, Qi Gong, Sound Healing, Kundalini, Hatha, Yin yoga, and massage to manage my ongoing symptoms.

I do warm water with lemon and ginger, celery juice, blueberry detox smoothie, (Anthony William) every morning on an empty stomach with 15 minutes in between each drink.  I trust Anthony William.  I pick the parts of his protocols that work best for me.  I follow his recipes as faithfully as possible.   I am a vegan now.  Usually Raw Until 4pm, then cooked.  This was a gradual process. My gut is great now.  Not the case prior.  This diet works for me but I always remain flexible.  I don’t think nutrition should be the same for everyone.  I just feel better eating this way.  It also aligns with my spiritual beliefs.

Minimal supplements – B12, sublingual, D3-K2, Esther C W/Rosehips, refrigerated probiotic, Zinc as needed.  Adjust as needed.

Quick sample soundtrack:

Anything by JayZ when I need confidence and swagger. (Don’t listen if you are sensitive to profanity)

In My Blood- Shawn Mendes

There’s Nothing Holding Me Back- Shawn Mendes

Let’s Get It Started- Black Eyed Peas

Miss Independent- Neo

Shackles (Praise) – Mary Mary

All The Way Up- Fat Joe

Sexy And I Know It- LMFAO

Can’t Hold Us- Macklemore & Ryan Lewis

I Gotta Feeling- Black Eyed Peas

Vivir Mi Vida- Marc Anthony

Rebel Girl- Bikini Kill – punk rock

Days Like This- Van Morrison

Brave- Sara Bareilles

Make It Happen- Mariah Carey

Hindu mantra chanting by Deva Premal, Kundalini mantras by Jai Jagdeesh

Favorite Podcast: 

Ram Dass Here and Now/ Love Serve Remember

The Mind Valley Podcast

Apps:

The Breathing App – Resonance Breathing/ Simple Yogic Breathing (I do 30 minutes of the 6:6 breathing) this can help calm your fears and lead you into a peaceful meditative state)

Sadhguru App – Popular Indian Guru- guided meditations, chanting, darshan, and online course called Inner Enginering

Pranayama (Yogic Breathing)

You Tube- Baba Ramdev (extremely popular Indian Swami) Complete Package of Pranayama for Beginners

Robert Moses – www.namarupa.org- online Pranayama courses- all levels.

(The best way to learn Pranayama is from an experienced yoga teacher in person).

Meditations (Kundalini mantras/guided meditations) by Dr. Ramdesh- I get mine on Spotify

Hypnotherapy online:  Marisa Peer on MindValley.com (Uncompromised Life Course) or Marisa Peer.com

My local hypnotherapist is Lopa Visaveliya at Purandhri Hypnotherapy Montclair, NJ

Phone: 201-254-7562 She does Zoom Sessions now.

Spiritual Nutrition: Anthony William /Medicalmedium.com

Pelvic Floor Therapy-

Pelvic Floor Yoga by Leslie Howard/ YogaUonline

Practicing Muladhara Banda (root lock) in yoga

Pelvic floor neuro stim device Mayo Clinic prescribed for me 2x a week (really helps)

BTL Emsella chair 6 treatments/ MRI technology to stimulate motor neurons in pelvic floor ( after the first session I feel so much stronger

 

A few books:

Living from a place of Surrender- Michael A. Singer (the course)

The Four Agreements- don Miguel Ruiz

The Untethered Soul and the Surrender Experiment- Michael A. Singer

Creative Visualization and Living in the Light- Shakti Gawain (better on Audible because they are mostly meditations)

Breaking the Habit of Being Yourself- Joe Dispenza (+meditations on Audible by Dr. Joe)

The Biology of Belief- Bruce Lipton

Stop Doing That Shit- Gary John Bishop (on Audible, hilarious, Scottish accent)

Autobiography of A Yogi-  Paramahansa Yogananda

The Beautiful Brain, The Drawings of Santiago Ramon y Cajal- abramsbooks.com (art book, gorgeous drawings, inspiring for meditation)

Be Here Now- Baba Ram Dass- (far out, groovy, great reading list at the end of book for continued research)

The Complete Illustrated Book of Yoga by Swami Vishnu-devananda -Chapter 8- Pranayama

The Science of Pranayama- Swami Sivananda

The Journey Within and The Journey Home by Radhanath Swami (An American Swami, both NYTimes Best Sellers)

Kundalini, The Arousal of the Inner Energy- Ajit Mookerjee

When Breathe Becomes Air- Paul Kalanithi (mortality, profound)

The Book of Secrets- Deepak Chopra (classic, can’t go wrong with Deepak)

ALS Saved My Life, until it didn’t- Dr. Jenni Kleinman Berebitsky (practical ALS hacks from a holistic doctor with ALS, inspiring and heartbreaking)

Any book by Anthony William- I like his first book Medical Medium as a general introduction and his Life Changing Foods book for recipes.

Until I Say Goodbye- Susan Spencer Wendel (an approach to mortality/ALS)

The Glass Castle- Jeanette Walls (best overcoming adversity story)

The Power of Now- Eckhardt Tolle- (classic, saved the best for last)  

 

 

Alejandro’s ALS Reversal

Alejandro Bianchetti, from Argentina, was diagnosed with ALS in January of 2016 at age 54.  He did a lot of research on how he could possibly reverse it. He experimented with different supplements. He found he felt better after running and ran two half-marathons. He studied the Krebs cycle and felt that glucose would be key in the process of reversing ALS. Those with ALS appeared to be wasting away and he tried to figure out why. 

Alejandro also read a lot about the power of the mind. Hie could see the results of his thinking on his physical condition.

Despite off of this he continued to get worse.

By February 2018 Alejandro could not swallow, had difficulty breathing and could barely move. He needed assistance with all the basics of daily living.

He entered the hospital on February 23, 2018 and on March 3 the doctors told him that if he was going to survive he would need a tracheostomy and a feeding tube.

He made up his mind at that moment that he would heal from ALS. He had been meditating and training his mind since he was diagnosed but he did much more of it while in the hospital.

Here is is the book that Alejandro used to help him get his breathing back while in the hospital:

 

 

 

 

He arranged to get IV fluids at home and added supplements, like Co10. He arranged for injections of glutathione and thiamine pyrophosphate. 

Today Alejandro has completed five marathons, many half-marathons and countless other 5K an d10K races.

How did Alejandro go from needing a tracheostomy and feeding tube and barely moving to being able to run marathons today?

Below is the video recording of the details of what Alejandro did to heal followed by a Q&A. After the video are links to Alejandro’s full protocol.

 

Here is the link to Alejandro’s protocol in English: https://docs.google.com/document/d/1u_AdDEznRtwGFQsCnytLlJdiNaC3OqMYL32m51MQHvo/edit?usp=sharing

Here is the link to Alejandro’s protocol in Spanish: https://docs.google.com/document/d/1n70X2AXcuihgD1kfJmuqAQcT_-9xKGWX11c6YwGVgLo/edit?usp=sharing

Above is Alejandro’s physical protocol yet he says his mental protocol is just as important if not more important. If he is under stress he loses functionality immediately, reversing hard-won gains. He is careful to think of everything even negative things in a positive light because he has learned that it is a combination of his thinking and his physical protocol that is helping him heal.

Today Alejandro is dedicated to sharing his story and helping others find solutions to ALS. Others have used his protocol and it is helping them. ALS researchers are studying what he has done to heal.

Carol’s ALS Journey

My ALS Story:  By Carol Jensen

Editor’s note: Carol is the only ALS reversal we feature without an “official” diagnosis. Carol was given a verbal diagnosis of ALS in 2005 by both a local neurologist and an ALS specialist. Her treating doctor when we interviewed her is sure she has ALS. We believe the only reason Carol was never given a definitive diagnosis of ALS is that she never let her ALS symptoms worsen to the point where the neurologist could definitively confirm it. If she varies too far from her program her very clear ALS symptoms slowly return. Many have told us a similar story. Their neurologist will not confirm their diagnosis until their symptoms worsen and finally a year or 18 months later they are finally diagnosed. Carol decided not to wait.

My name is Carol Jensen.  I am 64 years old (today is June 21, 2020). I am a wife and mother of two sons.  Do I have ALS?  I’ll let you decide.  This written record tells how I stopped the progression of worsening neurological symptoms resembling ALS with a lot of hard work and a lot of help from others.  I have put my story in writing to make sure I don’t leave anything out. It is my sincere hope that others will benefit from my experience.

The symptom that first sent me to the doctor in mid-July, 2004, was pain in my right hand and arm.  My right forearm began cramping intermittently throughout the day and night.  I had to take pain medicine at regular intervals to sleep for a few hours.  After a few days, fingers 3-5 began to curl up like a claw and I couldn’t straighten them. My hand began to hurt worse and worse.  I went to the chiropractor, who couldn’t help me.  I went to our family physician, a naturopath, who gave me an IV with magnesium sulfate to try to relax the muscle spasm.  It didn’t work.  He did a grip strength test and it was normal.

The muscles finally relaxed and most of the pain was gone.  I could straighten the fingers.  However, over a two week period, the muscles in my right hand shrank visibly.  Most dramatically affected was the muscle in the web between my thumb and forefinger.  I am right handed but now the right hand began to look significantly less muscled than the left hand.  I could still use the hand, but differently.  Swimming was suddenly difficult because the fingers were too weak on the right hand to form a “paddle” and pull water.  My ND sent me to a neurologist.

The neurologist found unexplained unbalanced muscle weakness in the legs.  My problem was not just my arm.  He also did a nerve conduction velocity test.  He poked my left hand with a needle attached to a gauge which showed a needle jumping in response to muscles twitching in my palm.

 He ordered X-rays of my neck, a CT myelogram and an MRI.  Only minor spinal stenosis was evident in the region controlling the hands.  Still the neurologist sent me for a surgical consult.  The neurosurgeon saw my shaking tongue, checked for Babinski’s sign (I didn’t have it), and irritatedly told the first neurologist that I was not a surgical candidate.  I was referred to an ALS specialist at OHSU, Portland, Oregon.

The ALS specialist examined me in February, 2005.  He found reduced nerve conduction velocity, improperly balance muscle strength.  He witnessed the fasciculations.  He asked me to come back when there was something I used to be able to do that I could no longer do (i.e., when I was disabled).  He thought based on the exam and interview, that there would be enough disease progression in three months that I might be easier to diagnose.   Apparently, ALS and related neurodegenerative diseases aren’t officially diagnosed until disability is more pronounced.  That’s a terrible price to pay for a diagnosis.  I had muscle spasms, fasciculations, and muscle wasting, and weight loss.  My breathing felt unnatural and a little forced.  My voice was weaker than it used to be and my tongue was shaking.  I had widespread motor deficit but no sensory symptoms (no numbness, tingling or pain, except if a muscle cramped).  My shoulders, hands, feet and face all had visibly less muscle than even six months earlier.  This was enough to convince me that for purposes of research and treatment I should assume the worst case: ALS.  My naturopath also believes I have ALS.   Together we ruled out MS and Lyme Disease.  It appeared to me that ALS fit my symptoms.  Delayed intervention could cause permanent impairment.

I asked the ALS specialist if I was likely to have any condition he could actually treat or correct.  He said “no”.  At this point, I said that I would rather spend my time and money getting well rather than spending money on more tests while allowing the disease to progress and irreversibly rob me of motor neurons.  To his credit, he did mention that creatine supplementation had been found helpful in slowing the progression of ALS.  I thanked him and went home.

As one of Jehovah’s Witnesses, my faith profoundly affects my daily life and decisions.  On this account I prayed for the wisdom to recognize a solution to stop or reverse ALS and the self-control to act on it. Then I got busy researching on the internet.  Most websites sold supplements to help with symptoms or slow the progression of ALS.  But one website stood out as a beacon of hope for permanently arresting ALS and even reversing it to an extent.  That website was:  ericiswinning.com.  There I found someone (Eric Edney) who had stopped and partially reversed his ALS and was willing to share his protocol online for free.  He also had an inexpensive book (Eric is Winning) with more details.  I bought it and read it… twice.

All the conventional medical literature I had read basically said, in effect:  “Put your affairs in order and expect to die 2-5 years from diagnosis.  Expect to spend your last years trapped in a motionless body being mechanically ventilated and tube fed.”  What did Eric Edney say?  You can get well.  Detoxify and avoid toxins.  Optimize your nutritional status.  Keep a positive mental attitude.  The body can heal itself if you remove the obstacles. 

Eric’s protocol is well-researched, science-based, practical and effective.  Eric Edney used himself as a guinea pig to determine if treatments helped his ALS.  Until his death (from natural causes, not ALS) he posted updates nearly every month as he continued to learn and try new things.  I believe that his website is the reason I am able-bodied today.

So, what did I finally do?

I began with weekly colon hydrotherapy to aid in detoxification.  I went to the recommended resource websites in Eric’s book and found a dentist who could do complete dental revision.  For me that meant having two root-canaled teeth removed (and later an adjacent molar that died).  I also had all amalgam (50% mercury) fillings and metal crowns removed.  The dentist replaced these with safer composite crowns and bridgework.  I had cavitation surgery to remove osteonecrosis in the jawbone.  The one-month whirlwind of surgeries and restorations was a time of rapid healing for me.  My symptoms were significantly reduced during that time.

I switched to a whole-food diet, vegan at first.  I gradually added back a little organic meat and dairy.  I quickly transitioned to a 100% organic diet.  For a while I did clay detox baths.  Later I did three conventional sauna treatments per week.  I began IV EDTA chelation to remove neurotoxic metals like lead, mercury, aluminum, arsenic, and cadmium from my system.  To protect my motor neurons from toxic metals being released into my bloodstream by the chelation, I followed the chelation with a sauna visit and I ate cilantro and chlorella to aid in toxic metal removal.  The next day, I took oral minerals to block reabsorption of loosened toxic metals, had an IV “push” of “Myer’s Cocktail” (vitamin C, B vitamins, magnesium and calcium and assorted minerals) with 1400mg of glutathione.  I also did colon hydrotherapy the day after IV chelation to remove any toxic metals dumped into the colon following chelation.  Several days later, I did another “Myer’s Cocktail” with glutathione.  After about a year of chelation, I settled into a routine of Myer’s Cocktail with 1400mg glutathione three times per week by IV “push”.  This is part of Dr. David Perlmutter’s ALS protocol.  Eric Edney did chelation, but never did long term glutathione “pushes”.  It really helped me but they are expensive and may not be necessary for everyone.

In January 2007 I did 40 hyperbaric oxygen treatments in a small, 1.3 atmosphere chamber supplied with 95% oxygen from an oxygen concentrator.  I experienced improved swallowing and my tongue got out of the way of my teeth better when I spoke.  These improvements lasted for years afterward.  I currently have occasional problems swallowing because of what appear to be esophageal spasms.  Thaey can last from two minutes to two hours.  I’m not losing any weight over it.

What do I eat?  For four and a half years I thrived on an all organic whole food omnivore diet.  At that time I ate some roasted chicken and vegetables, occasional small amounts of lamb and free range buffalo or beef, lentil soup, cooked eggs, and organic cheese.   My salads, smoothies, fruits and nuts and seeds were all raw.   Because of Eric Edney’s negative experiences with adding fish to his diet, I never eat fish.  Apparently fish don’t detoxifiy their own bodies very well and accumulate toxins in their flesh.  The mercury they store is especially dangerous for ALS patients.  Today, I eat all raw, organic whole foods.  Specifically I eat raw fruits, vegetables, leafy greens (lots of them-and cilantro every day), kelp, sprouts, nuts, seeds, and fermented raw cabbage and vegetables (Kimchi).  For eight months I ate vegan to accelerate detoxification.  I later added raw, pasture-fed eggs and raw A2 milk from pasture fed cows and raw goat milk to my diet.  I ferment the raw milk and eat kefir every day.  I’ve been eating all raw since July 12, 2009!

Regarding milk:  The raw, whole, unpasteurized, unhomogenized, pasture-fed A2 milk that I ferment into kefir should not be confused with the milk you can buy in the grocery store.  In Oregon you can only buy raw A2 milk directly from a farm.  Also, the casein in A2 milk (as is common in Jersey cows) is chemically different from the more common A1 milk (as is common in Holstein cows). A2 milk casein is supposed to metabolize differently from A1, not contributing to immune or neurological problems. http://fedup.com.au/factsheets/additive-and-natural-chemical-factsheets/a2-milk

Why did I go raw?  I got the idea when Eric and Glenna published their experience going to the Optimum Health Institute in San Diego, where they serve all raw organic meals to their health-seeking visitors.  After researching the raw diet at length, I learned that raw food has incredible healing power and that many terminal, hopeless patients have recovered by going 100% raw.   I thought it would be beneficial to add the raw diet to my many healing tools.  For the record, Eric thrived on an organic, omnivorous diet.  Most successful recoveries seem to be achieved without resorting to 100% raw and most people find all raw challenging.  I also thrived and healed on an organic, omnivorous diet (albeit high raw, and low animal).  I do notice fewer digestive problems and less stiffness on the 100% raw diet. 

Some have asked:  “Don’t you get bored with your diet or crave foods that other people are eating?  I almost never experience cravings.  I eat a very wide range of delicious, satisfying foods and enjoy them very much.  Raw organic food has so much more flavor than its conventional cooked counterparts.  Having organic, homemade kefir, kimchi and kombucha has really made my meals a pleasure.  I make my own kimchi with raw Napa cabbage, garlic, kochukaru pepper, and brine made from water and Himalayan sea salt.

What supplements do I take?  Wouldn’t it be nice if there were some “magic bullet” pill that would “cure” ALS and related neurodegenerative diseases?  There isn’t. I don’t believe that any supplements can stop ALS without a consistent commitment to detoxing the body, following a non-toxic diet, and avoiding toxins in your environment. Other disorders may be more forgiving of dietary and environmental indiscretions, but once your immune system begins attacking your motor neurons, it’s like a dog with a bone.  I believe that with ALS there is no “wiggle-room”.  You need to be aggressive and consistent with toxin removal and toxin avoidance. 

I do, however, take supplements to help protect my nerves and aid with detoxification:

Chlorella

DHA

Ubiquinol

Multivitamin and mineral supplement

R- Lipoic Acid

Vitamin D3

Iodine

L-tyrosine

ASEA (stabilized redox signaling molecules only available through network marketing at this time)

Ambrotose (a glyconutrient supplement available from Mannatech through network marketing only)

[Although I distribute these two products, I am choosing not to solicit business while sharing my story because there are always detractors who look for fault in those who share their natural healing stories, criticizing them for seeking profit at the expense of desperate people.  I have never taken a cent from anyone who asked what I was doing to stay well.]

Bio-identical hormones: DHEA, Bi-Estrogen, Progesterone, and Nature Throid thyroid.

I was diagnosed with pernicious anemia in 1999 and until 2015 I gave myself preservative-free B12 shots.  My current naturopath believes I no longer need the shots. We’ll see!

Today in 2020, I have my IV “push” of 2000 mg glutathione just once a week and seem to still be doing okay.  Currently I also do  the “Myer’s Cocktail” once per week. My veins are harder to stick and get a good push after many years of 2-3 IVs a week.

I currently exercise with short walks and bicycle rides.  I also use a TurboSonic (now SonicLife) machine for daily vibration therapy.

My lifestyle isn’t cheap or easy, but it has resulted in symptom improvement rather than deterioration.  I decided ten years ago to act quickly and decisively rather than risk being bedridden and on a respirator wishing I had acted before I was disabled.  To me it has been worth giving up the pleasure and convenience of eating and living like everyone else.  I am very fortunate to have an understanding and supportive husband who believes in me and thinks I’m worth saving.  Without his financial and emotional support, I would not be where I am today.  Are you listening, spouses of ALS patients?  Thank-you, Jerry, I love you!

How am I doing?  Today is June 21, 2020.  I believe I have stabilized my condition and even improved over my worst symptoms.  My tongue quit shaking long ago.  I have very infrequent mild hand or toe cramping.  The fasciculations in my legs are rare and short-lived.  Sometimes I can’t swallow for a short spell but I’m not losing any weight or sleep over it.  I breathe adequately, even at night.  My husband and I still take brief walks and bike rides and do regular stretching. My speaking voice is reasonably strong and clear.  I still talk, whistle and sing; though these functions are weaker than they were 15 years ago.

What about the ALS specialists?  Although I appreciate their work and compassion, I haven’t wanted to spend the money and time to go back.  The tests are expensive, painful, and invasive.  I don’t need them to know I’m doing better and am doing the right thing. 

At my husband’s request and the recommendation of the leader of a local ALS support group, I finally went to a specialist on July 2, 2013.  This visit occurred eight and a half years after seeing the last ALS specialist.  After a brief interview and exam, she said that her neurological screening doesn’t reveal signs of ALS.  I do still have fasciculations in my right leg and left shoulder from time to time, but they didn’t show up during her brief test.

The doctor thought that perhaps I had something called Parsonage-Turner Syndrome, also known as brachial plexopathy.  After reading up on the condition I am convinced that I don’t have it.  My shoulder pain was not severe or constant.  I didn’t have persistent pain but mild, positional discomfort when I used certain muscles in the shoulder.  I also didn’t have dysthesia or numbness.  Likewise, the brachial plexus does not supply signals to the legs, to my knowledge.  I have had muscle wasting and spasms in the legs and feet.  PTS also wouldn’t affect my breathing, voice or swallowing.  In the doctor’s defense, her time with me was limited and I should have prepared a written brief to make sure I explained my history of symptoms better.  Oh well!  I give her credit for being familiar with ericiswinning.com and speaking well of his program.  She herself eats an organic vegan diet.  No ALS for her!

Thanks for taking the time to read this,

Carol Jensen 

P.S.: 

Many people have asked:  Why aren’t most people getting well with ALS even though protocols like Eric Edney’s are available on the internet and in books?  I’ll venture an educated guess:

1)  Most don’t ever hear about it.

2)  Their doctors say “nothing can be done”.

3)  They or their loved ones believe nothing can be done.

4)  They apply only enough of the program to fail and not enough to get well. 

The evidence seems to suggest that for most people, nothing short of a “pit bull” approach to detoxification, nutrition and cellular energy therapies stabilizes or reverses ALS.  ALS appears to be unforgiving of toxin exposure, even after you think you’ve done plenty of detox.  It is possible that a successful ALS patient needs to adopt a permanently non-toxic lifestyle.  Don’t worry!  You can still have fun without poisoning yourself. 

Eric Edney died January 3, 2015 at the age of 85 from a heart attack after successfully stabilizing and partially reversing his ALS of about 25 years duration.  I highly recommend reading Eric Edney’s website, which is back up and running, despite a brief hiatus following his death.  If you don’t already have it, I recommend trying to get his book,  Eric Is Winning, on Amazon while it’s still available.

Although I highly recommend you read his book and protocol outline and updates at the website, ericiswinning.com, I will here  attempt to reconstruct what I remember of   Eric Edney’s protocol.  

Eric was convinced that toxins are what provoke the body to destroy its own motor neurons.  He tested his recommendations on his own body and raved when he got good results.  He never stopped researching, trying things, and sharing what he learned with others fighting neurodegenerative diseases.  Here’s what I recollect from years of following his posts:

Detoxify:

    Full dental revision by qualified biological dentist trained in the Huggins protocol

    IV chelation to remove toxic metals

    Hot baths with therapeutic detoxing clay

    Far infrared sauna  

Toxin Avoidance:

    100% organic, whole food diet

    Only safe cleaners for body and home

    Avoid exposure to toxins offgassing from new electronics

    Don’t take pharmaceuticals because they are toxic

Optimize the nutritional status of the body so it can fight back:

    %100 whole, organic foods

    Organic superfood supplements

    Non-toxic nutritional supplements

    Glyconutritional supplements (like Mannatech’s Ambrotose)

    As much food raw as possible

Rid the body of the Lyme organism and its co-infections:

    Colloidal silver

    Food grade hydrogen peroxide in distilled water, according to The One Minute Cure

Keep the body’s pH in the high-normal range:

    Alkalizing diet

    Alkalizing mineral supplements

Oxygenate the blood:

    Oral consumption of food grade hydrogen peroxide in distilled water according to      instructions in the book, “The One Minute Cure”                                                                          Oral consumption of Ozonated water

Positive Mental Attitude:

    Eric profoundly believed that attitude was crucial to healing the body of ALS or any disorder.

 I like the way the Bible expresses a similar thought:

“A joyful heart is good medicine, but a crushed spirit saps one’s strength.” —Proverbs 17:22

Over the last six years, Patricia Tamowski of Healing Advocates has made contact with ALS survivors who have achieved various degrees of stabilization and improvement using a fairly wide variety of methods.  I believe detox, nutrition, oxygen therapy and a loving and peaceful faith-based life make sense, and they work for me.  There are simpler programs that are working for other people.  I invite you to inform yourself and get behind an effective protocol with all your might.

Kelli, ALS and Zhineng Qigong

Updated October 9, 2020

Please read Kelli’s ALS reversal story with Qigong below the course descriptions. Kelli was diagnosed with FTD/ALS in 2013 and attributes much of her recovery to Zhineng Qigong.

Time Sensitive information October 2020:

Kelli is leading a Zhineng Qigong class and is inviting new people to join the class in early to mid-October. This is a wonderful opportunity to see if this healing modality resonates with you.

 

If you would like more information on:

  1. What Is QiGong?
  2. How to attend Kelli’s Monday-Thursday free course which will support the weekend recordings, enhance and clarify the Reborn weekend course. This will give opportunity for deeper healing.
  3. How to purchase the recordings of Ling and Lu’s weekend course.

Here is the link: https://docs.google.com/document/d/1LjP4ud_ya5gZYplJnC95riAbTBVLT71pkADFZx-SM-Y/edit?usp=sharing

Kelli McGowan was diagnosed with FTD, Frontotemporal dementia in 2012 and in 2013 she was also diagnosed with ALS. She was not worried too much about the ALS because the FTD was killing her. She was volatile, could not think, and in pain with the FTD symptoms. On top of that she had the ALS symptoms of muscle wasting, difficulty swallowing, holding things and needed help to go to the bathroom.

Kelli did a lot of holistic things to heal ALS, she took supplements, did homeopathic treatments, she ate a very clean diet, filtered her water, consulted holistic professionals. She had previously done a lot of research on holistic healing so was ahead in that area, yet now she had difficulty reading, thinking and organizing her thoughts. She read and researched whenever her mind was clear.

After an interview aired on a local station for dementia advocacy, a journalist offered to follow her story if she was willing to attend a Zhineng Qigong retreat. Kelli was very skeptical, and almost declined but finally decided to attend.

Kelli experienced such improvement in the weeklong qigong retreat that she ended up staying a month. Friends assisted her and at the end of the month both her FTD and ALS symptoms were greatly improved.

Kelli has continued her study of qigong, by attending retreats and studying. Today she practiced qigong daily online from her home and both her FTD and ALS symptoms continue to diminish. Today Kelli is over 90% improved as she continues her healing journey.

Here is the video of Kelli’s presentation Sunday, October 4, 2020:

 

 

 

Joyce Brown ALS Reversal Update

**Posted below are two 2020 videos, an interview and a Q&A Joyce’s contact info is below.

2020 Update on Dr. Joyce Brown

Joyce was diagnosed with ALS in 1988 at the age of 54. Today she is almost 87 years old young and living a full active life as a speaker.

Joyce’s main methods of healing ALS were:

  1. Prayer
  2. “Sleep teaching”
  3. Homeopathy & Acupuncture
  4. Changed diet
  5. Supplements including vitamin C, B and selenium
  6. Meditation
  7. Amalgam filling removal (done previously)

Below the videos, is a summary of Dr. Joyce Brown’s Healing ALS Story

 

 

Near Death Experience 1983. In 1983, five years before her ALS diagnosis, Joyce was extremely ill and almost died. In fact she did actually die and visited the other side. She documents her near-death experience in her book, God’s Heavenly Answers. Joyce learned many things while on the other side, about making the best use of your time while you are on earth, about not judging other people, and a lot of lessons on how to live your life.

Dental causes of disease. Among the other lessons, Joyce was told on the other side that in order to heal she needed to have a particular gold-crowned tooth removed. Although this tooth gave her no pain she went the next day to have it removed. The dentist did not want to take it out because the tooth looked perfect on the x-ray, but Joyce insisted, and it turned out that the roots of the tooth were black and infected. Joyce was also shown during her near-death experience how poisonous silver amalgam dental fillings are. (ALL silver amalgam dental fillings are 50% mercury, extremely toxic to humans, animals, birds, fish and more). Shortly after her near-death experience, Joyce had all of her silver amalgam fillings replaced with white fillings.

ALS Diagnosis 1988. Five years after her near-death experience, at age 54, Joyce began having muscle cramping, muscle twitching (fasciculations), difficulty swallowing, breathing, and walking, choking on saliva, and losing her voice. 

Joyce Brown

She went to visit a very well-respected Medical Doctor who diagnosed her with both ALS and Myasthenia Gravis. She didn’t believe the diagnosis. Why would she be saved five year previously only to die of ALS? She went to a second doctor who confirmed her diagnosis.    

To be absolutely sure of her diagnosis she traveled to a neurologist in Salt Lake City who had experience with ALS and had a third confirmation of her ALS diagnosis. The neurologist told her she might live until Thanksgiving, only five months away.

Hoping for a miracle she tried to find someone who had any kind of treatment that might work. Through her doctor in Las Vegas Nevada she learned of a homeopathic treatment from Germany that had apparently worked for some ALS patients in Germany. She agreed to try it and traveled 900 miles round trip once a week to get the treatments—injections which mixed her blood with the homeopathic remedy. She was also told to eat only whole foods and not consume meat products during the treatment period.

After 10 weeks of homeopathic treatments and 9000 miles of driving she still continued to get worse. Walking was extremely difficult, she could no longer eat in public and regularly choked on her food. People were having so much trouble understanding her speech that she looked for a voice board to communicate.

After 10 weeks of treatments Joyce’s doctor went on vacation for a week. She got so much worse the week with no treatment that she convinced the doctor to continue treatments when he returned.

All of this time Joyce continued to pray. She had a near death experience several years before her ALS diagnosis and had felt close to God since that time.

Joyce also knew that thoughts affected the body and so did not want to think anything that might affect her body in a negative way. She recited positive phrases out loud over and over again throughout each day to keep her mind positive. In addition, each night Joyce put on headphones during sleep listening to “sleep teaching”–her recorded voice repeatedly saying positive statements.

Joyce also decided to no longer attend ALS support groups during her treatment because they focused on how much everyone was deteriorating and what to expect with physical decline, instead of on what one could do to slow, stop or reverse the ALS progression. She did not want any negative thoughts entering her mind.

Joyce also saw a spiritual counselor and realized that in case she died she needed to forgive everyone in her life she felt had wronged her, including herself. She also asked God to bless her life. Looking back on this, Joyce feels forgiving herself and others was a key part to her healing.

Joyce continued to pray to heal, although she prepared in case God had other plans for her. She continued her weekly homeopathic injection treatments.

About a week after her 16th homeopathic treatment, while praying, Joyce felt a shift. She
described it felt like grey smoke lifting off of her. From that moment she felt different and when her husband came home that day he said she looked different. She no longer felt like she was choking.

In the coming weeks Joyce’s muscle wasting stopped progressing. Her doctor tested her and said her ALS was gone. She continued to gain strength over the next few months, although her muscle mass never completely returned. After more time, Joyce’s voice finally recovered completely.

Today Joyce is almost 87 years old, lives on her own and stays active. She has had life challenges and other health problems including two bouts with macular degeneration which have affected her vision but her ALS symptoms have never returned in the past 32 years.

Joyce is founder and president of Stress and Greif Relief, Inc., a 501(c)(3) nonprofit organization—helpstopsuicide.org, where she administers a suicide prevention lifeline (800-734-3439).

Joyce’s favorite saying is “Believe in Miracles, Expect Miracles and BE a Miracle for someone else.”

Joyce’s website is hopedr.org

To purchase her ALS Victory Package which includes her positive affirmations CD go to hopedr.org/ALS.

Joyce’s phone number for PALS ONLY please text to arrange a time to speak with Joyce: 1-702-677-1455.

To purchase her ebook Near Death Survivor Conquers ALS go to hopedr.org

Joyce’s book in which she describes her near death experience before she was diagnosed with ALS is called God’s Heavenly Answers by Joyce Brown, available on Amazon.

 

 

 

 

 

 

 

 

 

Coco Newton ALS Chapter in Functional Medicine Textbook

Here is the link to purchase the ALS chapter of the new Integrative and Functional Medical Nutritional Therapy textbook by Springer. The text book is available on ebook and pdf, hard copies are delayed due to the coronavirus. The ALS chapter can be purchased individually for $29.95 by scrolling down on this link.  https://www.springer.com/us/book/9783030307295 

The ALS Chapter, Amyotrophic Lateral Sclerosis (ALS): The Application of Integrative and Functional Medial Nutrition Therapy (IFMNT) is a very thorough examination of many, many aspects of ALS. It is written for medical professionals, yet it is something most PALS truly interested in healing holistically will want to keep around to read a bit at a time. You may not understand much of it on the first pass, but as you get more and more educated you will appreciate the science behind metabolism, inflammation, gut function, and oxidative stress for ALS patients and much more.
 
The chapter explains different diets and how they are metabolized. It talks about which fats will metabolize best for ALS patients, and natural detoxifiers you can include in your diet. The explanation of various supplements and why PALS may want to consider them is wonderful. Below are the topics covered:
 
There are gems in the chapter that most PALS will find useful in their healing journey. It is not to be read nor understood in one sitting for the non-scientific. Yet healing from ALS is a process and the chapter will give you ideas on how you can improve your protocol. Protocols such as the Deanna protocol are discussed as are things we may not have considered for ALS such as hyper-metabolism.  We would not be surprised if you find yourself referring back to this ALS chapter again and again and learning a bit more each time. The chapter is also a great reference to share with your doctor or nutritionist. Here is a sample page:
 
 
If you are not a medical professional, $169 for the entire textbook may not be worth it to you, but in our opinion the $29.95 for the ALS chapter in digital form seems wise. Since it comes in PDF form, you can print a copy for family members and to discuss with your doctor.  https://www.springer.com/us/book/9783030307295
 
About the author
 
Coco Newton, MPH, RD, CNS is a Registered Dietician and Certified Nutrition Specialist. She was also a member of the Michigan nutrition advisory panel. Although Coco began her career in conventional dietetics and public health nutrition, she soon realized that the chronic and complex issues of her patients needed more than her basic background. She pursued advanced training in Functional Medicine Nutrition Therapy (FMNT). By incorporating extensive diagnostic assessments and tools, she has created her new standard of care. Her passion is to see the health of people transform from hopeless to getting better.
 

We met Coco in 2013 when we interviewed Dr. Craig Oster, now a 26-year ALS Survivor. She is Dr. Craig’s nutritionist. We had interviewed some excellent functional Medical Doctors and Naturopaths around the country who had assisted PALS in reversing ALS. During our interview we were impressed with Coco’s depth of knowledge. It was clear she could hold her own with the best of them.  Coco’s website is CocoNewton.com.

Coco’s mission is to educate pALS, nutritionists and other healthcare providers to incorporate nutritional strategies to address the systemic imbalances in ALS. Coco was a featured speaker at the 2019 Healing ALS Conference. Those who attended the conference will appreciate her level of knowledge and expertise on ALS as well as her ability to explain concepts. Note that Coco has received no compensation for her work. She has donated her chapter.

More details on the textbook

Integrative and Functional Medical Nutrition Therapy: Principles and Practices is published by Springer. This textbook is for health care professionals, with peer-reviewed research backing up every sentence. It can be used by medical students in functional medicine programs.

From the publisher,Integrative and Functional Medical Nutrition Therapy: Principles and Practices will serve as an invaluable guide for healthcare professionals in their clinical application of nutrition, lifestyle assessment, and intervention for each unique, individual patient.”

This textbook is a practical guide to the application of the philosophy and principles of Integrative and Functional Medical Nutrition Therapy (IFMNT) in the practice of medicine, and the key role nutrition plays in restoring and maintaining wellness. The textbook provides an overview of recent reviews and studies of physiological and biochemical contributions to IFMNT and address nutritional influences in human heath overall, including poor nutrition, genomics, environmental toxicant exposures, fractured human interactions, limited physical movement, stress, sleep deprivation, and other lifestyle factors. Ultimately, this textbook serves to help practitioners, healthcare systems, and policy makers better understand this different and novel approach to complex chronic disorders. It provides the reader with real world examples of applications of the underlying principles and practices of integrative/functional nutrition therapies and presents the most up-to-date intervention strategies and clinical tools to help the reader keep abreast of developments in this emerging specialty field. Many chapters include comprehensive coverage of the topic and clinical applications with supplementary learning features such as case studies, take-home messages, patient and practitioner handouts, algorithms, and suggested readings.

 

 

Stephen Sherry Update 2020

Stephen Sherry was diagnosed with ALS in 1999. We had the privilege of hosting a Question & Answer session with Stephen Sherry in April 2020.

Part 1: Stephen summarizes what he did to heal in a video we posted in 2017

Part 2: April 2020 Q&A with Stephen Sherry

Stephen Sherry’s Story. Stephen was only 42 years old when he was diagnosed with ALS. This was 1999. He went to the top neurologist in Houston at the time, who confirmed he had ALS. Like many diagnosed with ALS Stephen had been under a lot of stress in the years leading up to his diagnosis—a divorce, a move, a stressful job, a job change.

Vitamins. Fortunately, Stephen was brought up in a household where natural remedies were used over medications whenever possible. His mother was always using herbs, vitamins, and foods to heal. So he asked his neurologist if there wasn’t something he could recommend to him. His neurologist said there had been some research that high doses of anti-oxidants might slow ALS progression and suggested vitamin C.

Research was key. After the initial shock and tears that inevitably follow an ALS diagnosis, Stephen, his sister and his then-girlfriend-now-wife began searching the internet for anything that might help nerves, muscles, and brain function, since the motor neurons are in the brain. As they researched, Stephen started adding other anti-oxidants and other vitamins including magnesium, omega-3’s, melatonin and more. He would add and subtract vitamins depending on how he felt and as he researched more.

Diet. Stephen also changed his diet. He no longer ate processed food. He read labels. He looked for foods that would build up his body. He read about detoxification, then ate foods and took herbs that would help cleanse his body of toxins.

Decided against prescriptions. Stephen was prescribed the standard ALS medication at the time called Rilutek, also known as Riluzole, but decided not to take it. He read about the side effects on his liver, which he knew was key to detoxifying the body. He also saw others at the ALS clinic he attended taking it and did not like the effect it was having on them. They seemed to be very tired and have brain fog. He felt he was doing way better with the diet, vitamin and detoxification regimen he was on. It also made more sense to him.

Life balance. Stephen kept working both because he enjoyed his new job and it took away the financial pressures of not working. His bosses were very flexible and he was able to sit for long periods at work. There were days where he was just too tired and they worked with him at these times. When he got home from work there were more articles to read and research, and of course, eat a clean diet and take his supplements.

Cannabis. Although Stephen used cannabis before being diagnoses, after diagnosis he used it medicinally because he felt it helped him both mentally and physically. Cannabis is known to be good for depression and physically he felt better on it. Stephen used cannabis oil, smoking and rectally.

Meditation and Attitude. Stephen also knew the importance of mental attitude in any disease and did his best to stay positive. He also used meditation to calm his mind and to visualize his body healing. With practice, he was eventually able to get to “quiet his mind” in just a few seconds. He found that doing this throughout the day helped him be calm and centered and in “healing” mode most of the time. 

Anything that will help. Stephen tried a number of things that were in the category, “They might help”. One of these was a Rife machine which after researching he decided to buy. He felt it made a difference, but as with many holistic treatments, he cannot be absolutely sure.

Amalgam fillings. Stephen’s sister kept sending him links about the dangers of amalgam dental fillings. All amalgam fillings are 50 percent mercury, one of the most dangerous neurotoxins on the planet! At first he did not believe these filling he had since he was a child could possibly be affecting his health, but the more he read, the more he realized that he would have to get them removed if he wanted to get better. He had so many fillings, in the end he decided it would be less expensive, and less risky to his health to have them removed and to get dentures, so that is what he decided to do. Within months of doing this in 2006, Stephen’s ALS symptoms began to reverse.

 

Today, 21 years after diagnosis, Stephen is doing well. He is able to walk, drive, do carpentry, work in the garden and play guitar. He enjoys time with his wife, family and friends. He is not cured. If he eats at a restaurant where there are additives in the food, he gets muscle cramping and fasciculations for a day or two. If he backs off too much on his vitamin regimen his ALS symptoms worsen and he simply increases his supplements.

Books and Resources. Stephen read articles about healing the body and the mind and he continues to do so. Early on he read neurologist Dr. Russell Blaylock’s work on excitotoxins.  He constantly looked for articles that showed what foods and supplements affected neurology. He read extensively on natural healing. Included were books and articles on emotional and mental health which he read were key to healing. Recent books are Behave, Thinking Fast, Thinking Slow, The Body Keeps the Score

Stephen Sherry’s supplement list. No dosages are listed since Stephen varied his dosages depending on how he felt. Stephen researched and experimented to find out what worked for him. Many are based on research and Stephen knows they are helping even if he doesn’t feel anything.

Dosage for you in particular will depend on your specific body’s needs and your specific symptoms. Many PALS get tested for deficiencies through a medical professional.

Pink Drink Recipe
3/8-1/2” ginger 
1/2 med to sm apple
1/3 cucumber 
1 or two stalks celery
1/4 beet and some beet greens
Some carrot
1/4 cup or so cilantro
1/2 dropper cbd oil
5-6 drops chaga mushroom extract
1/2 tsps lions mane powder 
1/2 tsps cordycepts powder
1/2 tsps reishi powder
1/2 tsps maca powder
1/2 tsps epimedium powder
1/2 lemon squeezed and maybe some zest
Sea salt
Filtered water

Supplements I use regularly:
Fish Oil
Coconut Oil
Magnesium
Maca
Silymarin
Vitamin B
Vitamin C
Vitamin D3
Curcumin
Vitamin E
CBD Cannabis Oil

Supplements I use sporadically:
Astaxanthin
Chromium Picolinate
Malate
Bee Pollen
Phosphatidyl Serine
Melatonin
D-Ribose
Sovereign Silver
Probiotics
DMSO
Magnesium Oil
Iron Supplement
CoQ10
Black Seed
L-Citruline

Possibly positive. I now use these sporadically or I would use them again if I think it might fit:
Idebenone
Beta Carotene
Alginol
Pycnogenol (Grape Seed/Pine Bark Extract)
Valarian Root
Lobelia
Kava Kava
Blue Lotus
Gingko Biloba
Parasite Cleanse
DL-Phenylalanine
Rutin
ALA (Alpha Lipoic Acid)
Vicodin
Catsclaw Extract
Selenium

Possibly positive, I would use them again when I think it might fit:
Olive Leaf
Grape Seed Extract
Grapefruit Seed
EDTA
Soma
Beet Extract
Hawthorne Berry
Bilberry
Acetyl L Carnitine
Stem-Kine (may boost stem cell production)
Zinc/Copper
Branched Chain Amino Acids
Potassium
Quercetin

I tried these but they had no effect so I discontinued them:
DHEA
GABA
Oregano Oil
Powdered Energy Drinks (I used several types over the years)
White Thyme Oil

Negative side effects. I would not use these again:
St. John’s Wort
Creatine

Manchester ALS Reversal

Below are links to 4 YouTube videos of Mark and Lisa followed by details of Mark’s protocol. The first is Mark’s story summarized in 50 seconds. Below that be sure to watch Part 1, Part 2 and Part 3  and read the protocol to get all of the details of Mark’s story.

Mark Manchester was diagnosed with ALS in 2011. He was in a wheelchair by the end of 2012 and by 2015 he could no longer move any part of his body and was dependent on a feeding tube and ventilator. Slowly beginning in 2017 and continuing in 2018 and 2019, Mark begin to improve. 

After over three years in a wheelchair and on a feeding tube and ventilator 24/7, Mark improved enough so he could have the feeding tube and ventilator removed and was able to walk on his own with a walker. Mark is not completely healed from ALS. His goal is to run again and ski again. For those who attended the 2019 Healing ALS Conference, please note that Mark was in a wheelchair at the conference only because he broke his leg, not because of ALS.

Mark is Dr. Richard Bedlack, MD, PhD from Duke University’s 42nd documented ALS Reversal. Below is a recent interview we did with Mark and Lisa Manchester. 

Mark and Lisa took a multi-pronged approach to healing Mark’s ALS. They remind all who are reading this that they are sharing what worked for them, and may or may not work for others diagnosed with ALS. Each person with ALS has different toxins in their body, different viruses and parasites, different vitamin and mineral deficiencies, and will have different mental/spiritual tools. Each person needs to find their own path to healing. This is what worked for Mark:

  1. They each researched the internet. They surfed the internet for ideas and as friends, relatives and medical professionals gave them ideas, they would research these possible solutions.
  2. Consulted medical professionals. In their case:
    1. Naturopath. Did basic testing and suggested initial treatment protocols.
    2. Concierge MD. Bounced ideas off of her and asked her to research items they thought might be helpful to Mark’s healing.
    3. Nurse Practitioner. The Manchesters have a friend who is a nurse practitioner who has given them ideas, researched for them and answered questions throughout Mark’s healing. It was she who suggested their naturopathic doctor.
    4. Physical and Occupational therapists. These have been key to Mark’s healing.
    5. Neurologist. It was Mark’s neurologist who first suggested the amino acid L-serine, which was a key piece of Mark’s healing.
  3. Testing.
    1. Mark and Lisa did a significant amount of testing ordered with the assistance of holistic medical professionals. They felt the NutraEval tests by Genova Diagnostics were very helpful. Gut function was tested, vitamin and mineral deficiencies, heavy metals and more.
  4. Diet, heal the Gut, correct vitamin and mineral deficiencies and detox.
    1. Lisa learned quickly that gluten, dairy, sugar and other foods caused inflammation and these were eliminated quickly, as were artificial flavors, colors and sweeteners. Eggs were never Mark’s favorite and they are largely eliminated because of their pro-viral properties. Vegetables and meat were organic as much as possible, and junk food and fast food were also eliminated. Once Mark went on a feeding tube, Lisa quickly rejected the standard feeding tube formulas and instead chose Liquid Hope or Kate’s Farm since these brands are organic and made from real food. Today, although no longer on a peg tube, Mark takes a serving of H.E.A.L. each day to get clean-sourced vegetables (HealinaMeal.com, use code “HealingALS” for 10% discount). H.E.A.L. can also be used as a complete feeding tube formula.
    2. Lisa and Mark researched what supplements they needed. Lisa early on figured out that Mark’s gut function was not good, and that he was not absorbing vitamins and minerals from his food so he did not have the building blocks to heal.
    3. Lisa researched supplements, got recommendations and finally decided upon Solle Naturals to provide what Mark needed to heal his gut, replenish his missing nutrients, and detoxify. She also added other supplements. Mark’s full supplemental protocol is listed at the bottom of this blog.
    4. Added L-Serine and Leap2BFit as key supplements that contributed to Mark’s turnaround (leapxx.com, use code “markman” for 10% discount). Mark takes once scoop on an empty stomach in the morning and a second scoop between 5PM and 8PM again on an empty stomach. See below for Mark’s full protocol.
  5. Strong belief in God and positive mental attitude. Both Mark and Lisa say prayer, meditation and positive mental attitude have been key to Mark’s healing. Their own prayers and the prayers and support they received from their church and community gave Mark and Lisa strength and encouragement. Also crucial was Mark’s positive attitude, willingness to try new things and research the Internet to find more information.
  6. Asked for support from family and community. Lisa has continued to work full time so Mark could maintain his health insurance. This means that she had to ask for volunteers and train family members, neighbors, friends, and paid caregivers to care for Mark when she was away and for breaks when she was home. She trained them how to transfer Mark using a Hoyer lift, how to care for his ventilator and feeding tube, how to comply with his eating and supplement schedule, and personal care. Mark had to acquiesce to having family members, neighbors and other volunteers do intimate personal care while Lisa was at work. Care for Mark would have been impossible without their generous help.
  7. Made the decision for Mark to go on a ventilator. In 2015 Mark was on a tri-pap 24/7 but was no longer getting enough oxygen to sustain him and his CO2 levels were climbing. Mark and Lisa prayed about whether or not to take this step to extend Mark’s life and after much consideration decided to give Mark every opportunity to heal and stick to Mark’s motto, “Never surrender”. Today they are very glad they made this decision.

According to Mark and Lisa, without ALL of the above, Mark would not have healed. They stress that just doing a few things is not enough, that an individualized comprehensive approach is necessary to heal ALS.

Mark’s full nutritional protocol is below the following two videos.

Mark’s Nutritional Protocol

Today, in 2020, Mark and Lisa continue to tweak Mark’s protocol. They remind those reading this that they started small and added things step by step, over months and years, and took away things that seemed not to be working. These are not recommendations, Mark and Lisa are simply sharing below what Mark is doing at this moment in time that is working for him.

Diet: Gluten-free, dairy-free, egg-free, no processed food, no artificial flavors/colors/sweeteners, organic whenever possible.
 
Supplements:
 
Morning (AM) : ***1/4 leveled tsp OR 2scoops that’s in jar of L-Serine 100mg.   (1 amino acid), purchase at www.Leapxx.com 
          *** 1 Scoop Leap2BFit (blend of amino acids & Turmeric,etc..) purchase at www.Leapxx.com 
(discount code markman)
 
           1/2 of dropper of Liq. Vit D3 10,000 IU **buy online, we use Vinco**
           1 capsule turmeric  1500mg … ** buy from Amazon
           1 gel high absorption CoQ10 100mg  **buy from Amazon
           1 gel Omega-7 Seabuckthorn **buy from Amazon
           
            Natures Sunshine : 1TBL Vit C Ascorbates **Contact Lisa for info or www.Naturessunshine.com, (Reference Lisa’s acct #433482) or call 1 800 453 1422
                                
            Solle Naturals: (plant based supplements) 
https://www.sollenaturals.com/naturalrevitalization/ or            (call them 1 888 787 0665 (Lisa’s acct # 260))
                          
                            1 Pack Vital (take in water)
                            1 capsule Adaptable         
                            1 capsule ProBioIQ
                            1 capsule Flex
                            1- 2 gel SolleMegas 3,6,7,9
                            1 capsule Verdezymes
                            1 Pack Cinnamate w/ AM supplements or midmorning/noonish,not later in day (take in water)
Also can mix Cinnamate and Vital in the morning together.
 
During the day Diffusing Solle Naturals Essential oils. It’s a blend, helps with the mind and body connection. It is very easy, keep it simple.
 
Mid morning/day Heal in a Meal (use code NSMM for a discount) or Solle Complete to make a shake/smoothie (w/ berries, almond butter, advocado,etc..or just with almond milk), 1 capsule Verdezymes                                                    
 
Mid day/afternoon or evening: *** 1/4 leveled tsp OR 2 scoops that in the jar of L-Serine with
              *** 1 Scoop Leap2BFit (on empty stomach)
 
                   1 gel Omega-7 Seabuckthorn
                   2 capsule Melatonin Extra 3mg  ** www.Naturessunshine.com. Lisa’s acct #433482
 
Afternoon/Evening PM:                                                                
 Solle Naturals :
                  (PM) 1 pack ReNue
                           1 capsule Adaptable
                           1 capsule ProBio IQ
                           1 capsule Flex
                           1 capsule FasTrack (helps going to bathroom/poo), sometimes 2 at night
                           1 capsule SolleMegas 3,6,7,9
                           2 capsule Verdezymes
                           also rub feet with Calm &/or Balance Essential oils with a carrier oil or Solle Flex AC cream(Solle Naturals)
 
Cistus tea: Mark takes Cistus tea as well throughout the day:
https://www.amazon.com/dp/B07BBQBBZZ/ref=cm_sw_r_sms_c_api_i_JUZNEbFY141RS
 
Note: Lisa and Mark are sharing what worked for Mark so that others can benefit. They are not medical professionals and each person needs to find their own solutions and get testing from their own holistic medical professionals. Lisa will answer questions about Mark’s protocol and can be contacted at: naturalrevitalization@gmail.com
                           
***are the amino acids that have helped
 
Pharmaceuticals
Mark used pharmaceutical medications sparingly when needed. He used Baclofin to help with muscle cramping and still uses this occasionally. He has used medications to assist with sleep, although now he feels the cannabis tinctures are working well, along with the essential oils. He needed antibiotics when he got infections although now is able to handle most infections with olive leaf extract before it gets to the point where he would need antibiotics.
 

Live stream & Recordings from 2019 Healing ALS Conference

October 10, 2020 Update

Our Healing ALS Conference recordings should be available this coming week!!!

2019 Healing ALS Conference Attendees will receive them for FREE. You will receive an email with a link.

Everyone else can purchase the recordings for $147.

To all PALS, and all conference and livestream attendees,

After a long wait the 2019 Healing ALS Conference Recordings are available this week.           

The 2019 Healing ALS Conference itself was magical. Of the almost 300 who attended were 100 PALS, including 10 who reversed ALS. PALS, families, medical professionals and others in the ALS community were there to support and learn from each other. It took six months of very hard work both by us and by those on our volunteer committee and it was worth every second. PALS and family members left the conference saying their lives had been changed. Medical professionals left with a new perspective on what is possible. We have spoken to PALS since the conference who have stabilized or started to reverse their ALS symptoms. This is exciting!

We fully expected to have the conference recordings to be available within two weeks of the conference. However, after the conference, the company we hired to do the website to post the recordings did not do the work we paid them to do. In addition, we lost control of all of our domains including HeaingALS.org for over three months. We could not post something on a domain we did not control, nor did it make sense to even work on something that could be lost at any second.

By the time we got control of our domains back it was mid-February, our busiest season, and we were working six days per week in our paid jobs. This effectively put the project on hold for an additional six weeks until our schedules were freed up. Once we had time, we then had to get on the schedule of the new website developer.

We are now back and forth with our developer, getting all of the pieces together and are making steady progress. It is a learning curve for us and we are going a little slower this time, rather than risk our website again by handing all pieces completely over to a developer. We do expect to have the recordings in the next few weeks.

Thank you for your understanding.–Patricia and Scott. In the meantime see below.

In the meantime, there is much you can learn and implement that will contribute to your healing.

  • We are hosting free Webinars every two weeks with live Q&A with links posted at HealingALS.org
  • Read the many blogs and articles on HeaingALS.org
  • Watch the videos on Healing Advocates YouTube channel
  • Shackel.org: This site if full of great articles on reversing ALS
  • ALSWinners.com: Great info in the monthly blog posts and Kim’s healing protocol.
  • EricIsWinning.com: Eric’s monthly posts from 2004 – 2014 are full of information.
  • If you are new, click the “How do I Heal ALS” button at the right the HealingALS.org home page and read the “Where Do I Start?” document.