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John Manse started the topic Bulbar ALS in the forum General Discussion 12 hours, 31 minutes ago
I was diagnosed with bulbar ALS. It is hard for me to eat and swallow. And I am not able to speak. Does anyone have this same problem? I have been following many of the members on line, but I am not sure if the treatments suggested will also apply to bulbar ALS. I want to give a “thank you” to Kim and Kay Cherry for all their help and also to…[Read more]
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Mark Spry's profile was updated 1 week ago
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John Moreland posted an update 1 week, 2 days ago
Looking for zoom invite to meeting tomorrow, 17 Jan please
Thx
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Will Steuber's profile was updated 3 weeks, 6 days ago
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Andreas Schoeneck's profile was updated 1 month ago
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John Moreland changed their profile picture 1 month, 1 week ago
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Barbara Sapanaro posted an update 1 month, 1 week ago
I am a 53 year old music teacher. I was just diagnosed with als on November 9th. It started with twitching in my left arm in March. Now I can barely speak, have difficulty swallowing liquids, am weak on my left side and wobbly on my feet. My neurologists basically want to prepare me to die. It seems to be moving quickly. Today two of my toes feel…[Read more]
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Hayley Gibbon's profile was updated 1 month, 1 week ago
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K Yee's profile was updated 2 months ago
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Matthew Weis's profile was updated 2 months, 2 weeks ago
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Derrick Campion's profile was updated 2 months, 2 weeks ago
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Healing ALS Team wrote a new post, Resources for Boot Camp Week 3 Mind 2 months, 3 weeks ago
Resources for Meditation Recommended by Other PALS
For novice meditator, downloaded “Head Space” appStart with 5 min, progressed to 30 min
Start with quieting the mind
Focus on breathing and the pre […] -
Andrew Bilverstone changed their profile picture 2 months, 3 weeks ago
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Glenn Fricke's profile was updated 2 months, 4 weeks ago
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Jared Brill posted an update 3 months ago
@patricia-tamowski-other-utah
Hi Patricia! Thank you so much for being an amazing lightworker! I have been following you non-stop the past month and want to see how we can help each other. My father Rick is in a very bad spot as he has been landed in the medical engine with difficulty breathing, and has been in 5 hospitals/skilled nursing…[Read more] -
Jared Brill changed their profile picture 3 months ago
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Jared Brill's profile was updated 3 months ago
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Nandhini Kumar's profile was updated 3 months, 1 week ago
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Bethany Jones parks's profile was updated 3 months, 1 week ago
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Healing ALS Team wrote a new post, Dr. Ashish Patel Ayurvedic Medicine and ALS 3 months, 2 weeks ago
We were very honored to have Dr. Ashish Patel, MD as our presenter at our Healing ALS Sunday Community meeting on September 20, 2020. Dr. Patel received his BAMS from Indore University and his MD degree at BHU in […]
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